Hey guys. I’m sorry that I’m posting so much lately.
I’m just so sad right now?
Like. I just hate how it is progressing. My mom had to point out that my legs are so skinny and it’s just withering away. I don’t see a problem with it because it’s just life, but it just made me feel really bad.
I just feel sad. It’s so demoralizing. It’s not helping my mental health.
I’m so upset these days and I’m so tired…
I don’t know. I hate this.
I hope you guys don’t think I’m wining about my rare disease and talking about it too much. I always feel self-conscious about this but I know others with MD might not understand in a sz-perspective.
I’m sorry you’re struggling. You’ve got a lot to deal with, it’s understandable it would bring you down sometimes. I’m sorry your mom said that. I hate when people criticise others bodies. It’s no one’s business but your own.
@LED@Twialine I think she might have meant “you need to stop the progression by exercising because your legs are really atropied”. But I don’t know how- this disease doesn’t stop progressing.
I don’t know. I guess I gotta start exercising more.
Anyway I really hoped that she didn’t point it out…
I’m sorry, you’re going through a hard enough time without people being so critical. I hope everyone in your life can become more compassionate and understanding.
I’m sorry. It’s hard when both your brain and your body are letting you down. Do you see a physical therapist about your legs? It’s not possible to stop MD, but you can slow the progression sometimes.
I know you feel hopeless, but new advances in medicine are happening every day.
Thank you, friends. I went out for a walk today with the dogs for 40 minutes. I passed out as soon as I got home. I gotta watch out on the exercise I guess XD
I had an excessive worry today which made me sweat excessively at Mass and also my heart started hurting again. Life is so exhausting. I can’t let my mental health ruin my physical health…
I’m so sorry you are struggling. I can understand your frustrations. You have a lot to deal with. Put a post it note on your mirror with encouraging thoughts and a huge smiley face. You are strong and you are loved. No matter what is going on that day you know you can get through this.
That is really exciting you went for a walk. You saw what you needed and did it. KUDOS to ya! Now can you get some Nutrament- a weight gain shake that is a lot of calories? That should put a little weight on you!
