With time I am able to detect the gradual symptoms of sz everytime I stop meds. Last time I stopped meds for two weeks before getting anxiety and heart racing which are my first sign that I am shifting into psychosis. I didn’t get any sz symptoms but I know these will come after the anxiety.
I had stopped 6mg risperidone cold turkey.
Why do you stop taking your meds?
Cause they make me tired, sleepy and make negative symptoms worse.
I’m in the same boat. But I take my meds because being psychotic isn’t an option.
Yea I still take my meds, I can’t stay for long without them as I eventually get psychotic. Once my Dr stopped my meds for 2yrs but I became psychotic. Sometimes I think being without meds psychotic for 2yrs damaged my brain and made negative symptoms worse.
I remember you talking about vraylar. How did it go with that? Were your doctors responsive of your treatment and changing meds?
It was recently approved here but insurance refused covering it. I can’t afford it without insurance. My Dr was good and he did what I told him to do except he refused prescribing me stimulants. I have tried Abilify, Latuda, Zyprexa, Risperidone.
My Dr is ok with me playing with my dose and stopping meds but he told me if I have to stop meds to go slowly reducing the dose and not cold turkey. I don’t have a pdoc now as he wrote that I am too stable to need him.
Ok! I understand. Yeah I’m on vraylar and it’s expensive. I have to pay out of my own pocket. But it’s no wonder drug, I still have to take Zyprexa with vraylar.
Hopefully your insurance will cover it in the near future. I think that people with Sz should be prioritized because it’s one nasty illness. And we need all the meds that are available.
hey @Aziz how old have you been when you stopped meds for two years?
I was 24, I went back on meds when I was 26.
ah okay. you already made so much experience! i would like to have the same relationship to my doctor like you, i think thats the right way
two years is a long time. maybe you have more like a episodic psychosis and the other psychosis were because of stopping meds to fast…
I was psychotic most of the two years lol, paranoia and delusions. I was just not involuntarily hospitalized. Though later when I smoked weed while being on Abilify my parents called the cops as I was destroying the house lol, they gave me extra meds at the emergency then I got out. But yeah that happened after I stopped meds for 2yrs, I am sure if I have never stopped meds I would be better now, brain damage. My original diagnosis was brief psychosis. I never got psychosis on meds unless I smoked weed. I think weed triggered my sz, I stopped smoking it since last time I went to the hospital.
i understand did you had positive symptoms all the time or did you have also episodes when there was nothing. when i was psychotic the first time i remember that there was also time when i was symptomfree. i didnt worked or had any other things to do. just go outside for a walk
It was not 24/7.
Whenever I stop my AP I feel very anxious and thinking about a lot of things at the same time, I can’t concentrate on anything, I also have the perception of knowing when I’m going to have a crisis, I’ll never stop taking my medication again, I feel very euphoric. I also hear a lot of voices when I stop.