So my therapist kept telling me my trippy hallucinations and seeing lights could be some kind of seizure activity, and she wanted me to go get it checked out at a neurologist. I feel nervous about it for a number of reasons
I’ve never been there before and don’t know the drive
We’re supposed to have a huge winter storm tomorrow-I don’t wanna drive in that but I’ve waited MONTHS for this appt
Do I have to tell them about my psychotic disorder? I would rather not. I’m trying to figure out how to talk to them about how I was recommended. I guess I could say my therapist, I just feel uncomfortable about it. I’d rather not bring it up at all.
It’s going to make me late to work and I’ve already had to miss a week of work because of my virus turned 3 different bacterial infections illness (I’m pretty ok now, the worst of it is over but I’ve still got a while before I’m fully better)
I just have this sinking feeling they aren’t going to find anything, because no one ever finds anything when I go to them. I feel like I have the most unrelatable and bizarre issues ever.
Anyways that’s just me letting off nervous energy. I’ll go to sleep now. Wish me luck
Oh I have a navi in my car, but I hate driving and going new places always gives me anxiety. I’m really being a baby about it because it’s like a 15 minute drive away, which is nothing.
I think you should tell him. It’s an essential part pf your life. That being a neurologist he should know what’s going on with you cerebrally. He probably already know’s from doctor’s notes anyway i’m guessing.
I dislike to drive to unfamiliar places too,my driving skills is okay but I get nervous on the road…luckily GPS can help me get to a place I never been before,I had only used GPS to two different unfamiliar places…one almost lead me to accident because I was not prepared and use the GPS by hand,which is extremely dangerous…
I know how you feel, Anna, I hate driving, too, and to new places even more so - especially when I worry about where to park and if there is enough parking place! Good luck with your appt and yes, do tell the neurologist about your psychosis, he will need to know.
Neurology appointment went well! They think my visual hallucinations (the lights anyway) are auras for migraines. (I’ve always gotten terrible headaches, I just never went to a doc for it before). Since my brother gets partial motor seizures often though they want me to go get some funky brain scans done just to make sure it isn’t seizure stuff.
I’m glad I got an answer at least! And the doc even gave me a list of ways to avoid triggering the migraines so that’s cool. It was such a quick visit, once again I got so much anxiety buildup over such a tiny thing. Such is life I suppose.
Dear Anna,
I am glad your appointment went well, my mom and brother get migraines, and they suffer terribly, my brother goes for botox injections every 2 weeks, it is the only thing that works for him.As far as lights, i get seizures, so i see strobe lights, and it is a warning to me that it could be a seizure coming on.
See, you got through it and it was not as bad as you thought it was going to be!
Missy
I see flash of lights often, but mine, is the cause of supplements on top of my risperdal. When i stop taking supplements for few days, my flash of light disappears.
Yes. I get auras from time to time without the headaches. I didn’t know what they were and thought I was having a retinal detachment.
One time. I even had an olfactory migraine where I smelled something like sulfur burning, but no one else smelled it. Strange stuff. I don’t get them very often anymore now that my blood pressure is under control.
I’ve had migraines since I was 13. But when I started on AP’s that stopped. I’ve had two migraines in 4 years. I used to have them every second week. It’s wierd.
My head aches were so bad that I lie on the floor in a pitch black room vomiting and thinking my head was about to explode. I had a lot of strong medications that made me all groggy. I also had an aura 30 minutes before my head ache started.
I’m glad you get to be checked up by a neurologist. I have been too. I have no seizures. Sz symptoms can be very similar to temporal lobe epilepsy. EP is treated with for example Lamictal, same meds as bipolar.
Some tips for myself that I have learned over the years for migraines that may help. I do have certain triggers that I’m now aware of. Menstrual cycle time can be a trigger. Coffee outside my normal drinking time. Too much msg or for me it’s certain types of junk food. I know not to go over board on all of these things during that time of the month or I will get a migraine.
I love candles but I can’t look directly at them… gives me the halo affect or aura. Same with most lights.
Those fun pictures games of looking at the black spot until you see… Can’t do them lol
Outside of that I find that being on a better sleep and eating schedule helps a lot. Good luck and I hope you get some relief from the visuals.
Wow mine were never that bad. I basically just get stuck in bed during mine, no lights/sounds, motion or even smell because it makes it way worse.
My dad of course was never sensitive to my headaches and still likes to run around with the dog playing loudly making her bark or likes to bop my head when I have one. Sigh.
Best of Luck with the neurologist. Im sure all will go well.