This is a good friend of mine:
His heart is waaaay more trashed than my heart is. He needs an externally driven pump to keep him going. Most people with LVADs just lie around waiting for a spot to open up on the transplant list. Larrie is out on his mountain bike. If he can do that then I’ve got no excuse for not picking up a camera and going for a walk with it.
He’s truly amazing! What a great influence and inspiration!!!
Thats awesome man. Still givener 
I could not read all the comments on this thread, I’ve been awake 24 hours. And I have fatigue right now. I am trying to relax with TV and may put down my phone in a minute. I either oversleep or undersleep. I’m either on meds that sedate me too much or don’t aid in sleep. I know what it’s like not wanting to sleep or, at times, requiring to wake up before you sleep. Don’t blame yourself.
I went out today and walked twice. Two days had passed I couldn’t get out. The more I get out the more likely I am to get out in the future. I guess that’s a habit.
Rather than make a new thread I’ll just continue this one.
Last week, I went out on Thursday and Friday and had a nice time socialisng. Then spent Sat/Sun/Mon day in bed feeling exhausted.
I saw my counsellor today and she told me that maybe that’s because I’m not used to doing things and that if I was doing more more often I wouldn’t get so tired.
I find it hard to accept, but this is what most medical people seem to be saying so I’m unsure if its wise to disagree with all of them 
Honestly, this is a large part of it. The first two to three weeks are the worst and then you’ll find you suddenly adapt and it doesn’t bother you nearly as much. Even when I’m exercising and I start to power down I just keep going because I’ve learned I find my rythm about twenty minutes in and then I can go for a lot longer.
Well I saw my counsellor again this week and this time she was saying the opposite. Might confront her about this tbh. I couldn’t remember if I made this thread about my counsellor or my support worker.
My counsellor told me this time to listen to my body and that some people need lots of sleep and its not something we can control. Maybe it doesn’t directly contradict what she said last time but it seems to be a slightly different attitude.
@anon4362788 brought up a couple of good points. It could be something like Chronic Fatigue but also energy produces energy and the more you sleep sometimes the more you feel tired.
I am constantly tired. I feel exhausted all the time. I think maybe i too have chronic fatigue
I used to nap a lot years ago. But then I got hobbies I really enjoyed and stayed awake to do them. It’s very hard I know but like @anon82948922 said you get used to it.
Now I have my son. He is just 1 and I’m constantly busy. Tired and busy. Hard to get through the day to be honest. Routine is key.
Fatigue is not something we can control in my opinion, I’ve got and had it for a while although not extreme where I sleep for days on end but I can get very exhausted if I do too much (its too much to me) like anybody else would find it easy but bc of the fatigue I have to rest more frequently,
I had a blood test at my gp to rule out any other things that could be affecting my energy levels like Celiac disease or iron deficiency but it was all clear.
Despite the fatigue I push myself but very gently & I try not to overexert myself and when I do I know I will be exhausted,
Recently it took me a whole day to rest from exhaustion.
This topic was automatically closed 90 days after the last reply. New replies are no longer allowed.