I had not tbh
They have the max doses, but I think this comes into play here in the UK with combos
On the policy I quoted it had this visual, but Cariprazine isn’t on there EDIT (Yes it is!)
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You could always ask them what their scientific research is on which they are rooting this recommendation.
I would be very interested if they could come up with something convincing.
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I will do so.
There is no rush
Damage control - I have phoned in just now to get to my pdoc to let him know I will stick to my PRN limit for Diazepam
That’s the only thing I think they can use against me, so I will be under the radar now I hope
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I took up to twice the max dose of one of my APs at one point. They just gave me an ECG and then raised it. My ECG came back as abnormal but nothing of concern. I lowered it back down myself to the max dose because it didn’t really help much so it wasn’t worth the risk. In my experience there are diminishing returns when you are above the max dose so it’s not worth the heart risk.
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Maybe they are just pissed off about your diazepam use and this is simply a threat.
Thanks for sharing your experiences.
You’re right, it’s definitely not worth it!
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Not sure what’s going on
But here the laws scare me a bit
I have been assessed under the mental health act several times, and basically if you do not go voluntarily, then you get the law involved and they can do whatever they like
Just hope that they accept I have capacity, as I do I think for sure
The problem is if they regard my refusal as the wrong decision, I could be in a grey area, and I don’t like that.
Keep it black and white!
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But they don’t have beds. Where will you go!
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They send people hundreds of miles if sectioned and no local beds
You can end up in a private hospital
That’s an even worse prospect, as I am not sure how they would treat people compared to the NHS staff
But this is not on the table I don’t think
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Honestly, if I ever were to move to the UK I would just see my pdoc via Zoom and take the Eurostar a couple times a year to get my meds here.
You’re not painting a pretty picture of the system across the Channel.
I don’t mean to disparage in any way.
But to be fair to them, everything worked as well as it could pre-covid
Now it’s absolutely ■■■■■■
Now they’re talking of spending cuts here, when we need more funding in mental health
Even the nurses are going to be striking I think
The problem is not the people, it’s the lack of investment, and scaling back of services
My opinion is when they promoted care in the community, it should have been protected, and not allowed to be eroded by lack of funding
Imagine how much it would cost to house us all in asylums like back in the day?
Just basic community care would be a fraction of the cost
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I think Hunt is presenting his plans to tackle the budget deficit in the UK today. Will be interesting to see what he’s up to.
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Highly agree. It costs WAY less to pay someone a living wage to go check in on 4 people once a day than to hospitalize those same 4 people. Unfortunately, someone is always going to try to underpay that individual and give them 8 people instead of 4. Then 12 instead of 8. And then before you know it, an hour long visit turns into a weekly phone call. And all 12 people end up suffering, needing more medication to manage peripheral symptoms that would be better handled by comprehensive support networks, working less, having more complicated health issues long term, and requiring more money to support than if they had just added 2 more full time staff to go check on 4 people each.
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be careful with this man!
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Thanks @salivanjack13 - I won’t take this too far.
To be honest, I hadn’t realised with my combo on that chart I was on 100% of any given dose for a combo!
Going up just a bit didn’t seem like a big deal.
Maybe I might take them up on the ECG as a minimum
This is exactly what has happened here
It’s such a shame
The nurse at general practise told me an 18 year old with suspected psychosis got given a pdoc appointment in a years time!
Mentioned it before, but it’s not a good time to have onset psychosis or many other things right now
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Welcome to the forum @salivanjack13! Glad you found us
A few tips on things that confuse newbies:
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Considering the qtc, monotherapy might be better. You can’t be treatment resistant until you’ve tried them all hehehe!
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Can you try to go for karxt trial? Effect size for karxt is 0.61 and side effects are more bearable
Alternatively, ask for ulotaront trial
We don’t see the new meds in the UK until they either go generic or the odd newer one will show up but a few years after the US