So after a lot of discussion I am now taking a depot of haldol 100mg every 2 weeks. I have now tried nearly every drug available from Abilify to Zuclopentixol and nothing really works. I have been told that I am treatment resistant and I must go on clozapine but after a blood test I was found to have a low white count due to me taking zuclopentixol so they will not persue the clozapine as they expect a similar reaction.
I am running out of patience. The voices talk to me daily telling me how to kill myself and that I am evil and that I work for the devil. It upsets me because I have never to my knowledge ever been evil. I have never had a fight, I have never hurt anyone but on and on “Your evil you have evil blood. You work for me I own you, Do as I say”
My poor wife puts up with this crap day after day she is there for me and I am now a total waste of space as I no longer work I do nothing around the house to help her and I am constantly irratable. Hopefully the haldol will help a little I just need to get out of this hole that I have dug for myself whilst trying to hide from the voices
you are not a waste of space at all your a very nice person who has a disability its not your fault im yet to meet a schizophrenic who had it easy to begin with. you like me are being to hard on yourself your wife loves you and you deserve to be happy. don’t put yourself down tc
I am sorry to hear that you are treatment resistant, this must be tough.
I lowered my Risperdal doses below a sub therapeutic level, and now that I am at 3.5 mg and going to 4 mg, the Risperdal is no longer working for me, still.
I will not go above 4 mg, so my pdoc is going to have to find a solution - I am “drunk” from Mania - I am acting like a complete idiot - clown. My poor elderly Mom has enough of my silly actions.
Its a great feeling for me, but I am annoying other family members - I may end up calling my pdoc in a couple of days - Enough is Enough!
I really don`t know enough about this-but there is ECT.
i believe there are a few members on here that were also treatment resistant and it really helped them.
Hopefully they will catch this thread for some advice??
Ok my voices say the EXACT same things as yours, and you have to know that it is all BS. It’s stupid noise, it doesn’t mean anything. Maybe you have to listen to them but you don’t have to believe what they say.
I wish you luck with your new medication. Don’t give up hope yet! There’s always therapy too, though heaven knows that hasn’t evolved as much as it should have by now.
Yes it is fair to say that I get a little relief from the voices when medicated but the voices never go away altogether. The best drug I have been on is flupenthixol depot but I had to stop taking this because of the terrible akatisia caused by this drug.
I’m sorry you’re going through this. I was treatment resistant and had been on every drug except Clozaril and was still tormented everyday. My pdoc recommended ECT. It worked wonders. For the first time I was symptom free. I received ECT for three years and am now trying without out. I haven’t had a treatment since December. It has also made the meds more effective. When I started the treatments I was on the max doses of Risperdal and Seroquel. Now I’m on a lot less Seroquel and Geodon. Might be worth discussing with your pdoc. If you do get it two things I would bring up; make sure it is unilateral as bilateral gives unpleasant side effects and I’ve heard can make people worse, also tell them to give a heavy dose of anesthesia. I didn’t get enough in the beginning and woke up too soon which was very unpleasant. Good luck!
