I’ve been on them for a quarter century now and I manage to work around them pretty well and have a good life. I’ve made peace with the fact that I’ll be on them until I die.
1 Like
If the medications dont do what i need them to. Then i dont want them. Currently ive found something that works. So its been a long road and ive put myself on many meds. I like the idea of coming off though. I just have to put in the work and learn to cope. I have hope. I by no means praise the meds but they are what they are. Just like you splint a leg until its healed.
2 Likes
No. I care too much about what my family has gone through to possibly put them through that again. I didn’t enjoy the episodes and won’t get into them again unless my ap stops working.
1 Like
I am currently off of all AP’s. Yes I do struggle but I have developed coping skills to be able to somewhat remain stable. I am this way because it basically took 10 years to diagnose me and this is how I am used to living.
I am still on an antidepressant to help with obsessive worrying and I also take a high blood pressure pill when I get a bad panic attacks. I am also on NAC and currently am looking to try out l-theanine.
It is not an easy road and is definitely not for everybody but it is the way I am.
2 Likes
im intersted on this Amyloban 3399 is it suppose to help like nac,sarcosine , but better?
It works by increasing nerve growth factor in the brain, and it has been tied to improvements in mental health via studies.
I’m going to take it in a few weeks, I’ll report on how helpful it is.
2 Likes
Will be interesting to hear how it affects you. If it even does.
1 Like
Yes I do. One day.
1 Like
What did your psychiatrist and family say about coming off meds?
1 Like
I have been off antipsychotics since fall of 2014 and probably could have been off since fall of 2012.
I always thought I would be on them for sure and vowed to never go off. It won’t work for everyone but there is the hope it’s possible. I did a Med change in early 2012 and had been dealing with very severe symptoms. For whatever reason the symptoms began to vanish over the course of a few months. I still have some symptoms for sure but they are something I can live with and the side effects AP’s gave me were so severe that it was worse to be on them. I can’t explain it and I don’t think it’s wise to go off while you’re experiencing a lot of symptoms but things can change and you may not know why or how.
4 Likes
Yes i do. When i am older or like 70 years old i think i can go without or a minimum. As the brain needs time to heal.
No, I just hope for new medicine that doesn’t have TD or akathisia as side effects. I love my AP except for those two side effects.
1 Like
I’m the opposite. I fear that one day I’ll be taken off my meds or switched to something else.
1 Like
Is that prescription med or over the counter?
I found it. Its expensive.
Decided to go off my meds and almost got killed.
I recently decided to stop taking Wellbutrin and so far my depression hasn’t returned and my mood is stable. In addition, my bowel movements have returned to normal and no more constipation.
I don’t like the side effects of my antipsychotic but it definitely keeps me stable and grounded. Besides the sexual dysfunction and high cholesterol I don’t think I’ll be coming of this medication anytime soon. It gets too dangerous for me. Hopefully they find some sort of a cure in my lifetime.
1 Like
I had a terrible experience going off aps. I became psychotic and delusional and was in the hospital a long time for most of the fall. I took aps for 35 years and stayed sane and had few symptoms. My pdoc took me off aps and it went badly.
So was it the return of schizophrenia or was it medication withdrawal induced psychosis?
I entertain the idea of coming off my AP’s at some stage in the future. But i have to be honest, i’ve never felt this good in a long time. And i have minimal side effects. Also, when i’ve gone off my medication, i’ve suffered horribly. So i’m happy to stick to my medication regime unless otherwise directed by my pdoc.
1 Like
I never ever want to come off my Anti-Psychs - i dont care about the side effects, I NEED THEM, to stay stable. so Never.
1 Like