I hope i dont die 20yrs early, that is really depressing
I wonder what the life expectancy is when you take away those who have succeeded in committing suicide during the earlier,more acute, stage of psychosis/schizophrenia .
I don’t think suicide is the main factor here. I think APs are the culprit: it causes diabetes, heart diseases, dangerously high prolactin and it seems we have a brain tumour and even in some cases cancer.
id like a taste of paradise before I die
Sometimes I wish I could get off them and intensively learn how to cope with my delusions, anxiety, not thinking straight, etc on my own through CBT or something. I know that’s probably not so realistic. I just spend a lot of my time already coping with fear, confusion, and misunderstanding life every day from ongoing symptoms. It’s so not fair that I am going to lose life span. I want to be here for my children. Off to the treadmill mini goal for me. Sigh
Sometimes I wish they had never started me on antipsychotics. At one point I think I could have made it without them, but now I’m dependent on them. I get really crazy when I don’t get them.
I want to see how my brain has changed with an mri. Maybe I’m in type two psychosis where there’s no brain change
I only scan read it but using Clozapine as an example is unrepresentative of the broader range of AntiPsychotics that are available
And It’s not even a first line treatment
I didn’t really have any prescriber go over side-effects with me. I had two docs check to see if I had any muscle problems (they moved my arm/wrist joints). At one point I was afraid that I was developing tardive dyskinesia, but other than this sucking in of my lips/mouth I seem to do now after the meds, I think I’m ok. My blood pressure was really low too and I stopped having my period (which I learned later should probably have meant my prescriber should check prolactin levels).
I had no clue I had Parkinsonian symptoms . The cogwheel rigidity is better with the procyclidine .
I had no idea akathesia was a possible side effect, and I wasn’t told to watch out for ANYTHING literally zero information on possible side effects when I went out of in-patient care. Literally zero communication on what the drugs would do, positive or negative. Neither were these risks communicated to my family.
For years, the doctors tried to educate me, and I was unavailable for their input. Oh well. And I’m 70 years old and in good health.
Jayster
That’s great. I hope I get to be 70 years old and in good health some day. All these statistics and studies scare me. @Jayster
Same here
I think it might be partly cos they don’t want us to get put off these meds.
Cos we might kill someone or ourselves.
Etc etc etc
And yet, there is a local ban on discussing anti () psychiatry.
^^ The problem is ant p criticises mainstream psychiatry while offering little of value as an alternative . That doesn’t mean that mainstream psychiatry couldn’t be improved . In my experience the quality of MH pros needs to be improved , as much as any needed improvements with meds .
Same with me @Ryanana, when I was put on anti-psychotics and every psychiatrist visit thereafter across all the psychiatrists that have treated me… None of them have ever offered a word of warning or advice about the side effects of taking anti psychotic medication for either the short term or long term.
Same here re lack of mention about side effects . Pre being online it was the small amount of info in the library, or nothing.
The reason that doctor not telling you the side effects is not to scare you at the first place. The side effects list just too long and frightening which may scare people away.