According to my new sub specialist, my biopsy from 2018 showed

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I had squamous mucosa dysplasia. I haven’t had a biopsy since then. So he’ll be doing new biopsies plus bladder ablation. I hope whatever is going on, it can be fixed and my pain will be gone.

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Glad your getting the specialist attention and hope they sort it all out for you @LilyoftheValley .

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Thanks @rogueone

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keep writing on here @LilyoftheValley. I hope everything is going to work out okay.

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Thanks @bobbilly . 1515

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I hope your surgery mid-October goes well. If you don’t mind, I’ll keep you in my prayers.

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Thanks @WhiteRaven

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sounds like some doctors that saw you dropped the ball? wtf.

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Yeah. My last urologist told me he’d never seen that in the bladder before, never read about it, and had no idea how to treat it. He told me to go to Cleveland Clinic or U of M, or some other major research hospital.

That was a year ago. But because I never got answers from any other urologist either I just quit trying.

Well, that is, until I had an abdominal Ct scan that showed issues with my bladder. Then I decided to try again.

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well it’s such good news that you are going to finally get some relief from treatment…are you in danger of health until your surgery?

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I’ve lasted this long so I figure I’ll be ok. Plus the dr prescribed some medicine to help with my symptoms so that’s good. Also for the first time in 4 years, there was no blood in my urine. There’s always blood in my urine. So frustrating

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You are being incredibly strong! I am using your show of strength as an inspiration for my own current health issues…

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Thanks @WhiteRaven . I’m nervous too.

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