Keep fighting. I do better than most and yet got a little physically sick a month ago and everything went out the window. My normally good routines got upset and threw me through a loop.
I think it’s hard to totally live positive with what we deal with but most times is better than not…so keep fighting for better function even if that means a little bit more exercise today. It all does help and you learn to surf the rough waves and ride them out to the calm.
If you don’t actively implement changes in your life and do them then you have accepted the way things are.
It’s up to you to change things and improve your life, as harsh as these words may seem. It is you and no one else that can change things around. It takes effort and willingness to do new things, but unless you do then you have already accepted the things as they are and life is as good as over.
Get up! Exercise. Do that press up. Eat healthily. Learn how to cook. Get out and do photography. Do a college course on photo editing. Go for a walk. Travel anywhere. Just do something and not wallow in the mire of helplessness.
The social/personal achievement aspect is a big one. I think we are handicapped in that aspect. But it´s difficult to realize. And sometimes you hit your head hard against a wall trying. But the wall isn´t gonna move.
I haven’t done that yet. If I can’t make a big change I work on a small change. I let my walking slide over the past couple of months, getting back on top of that now. Also getting back on top of my photography, which I strayed from for the past year. Both feel good. There’s always a bit of wiggle room if you’re willing to shake yer booty.
I think it’s important to remember to be kind to yourself, especially with this illness.
It’s cyclical in nature, so the best we can do is to understand that it ebbs and flows, and be kind to ourselves when it’s a difficult period.
Acceptance of SZ as a chronic illness isn’t giving up-- it’s accepting that there will be good times and rough times, and that we may have certain limitations when things go a bit mucky.
Acceptance is hard-- we are all fighters here. But understanding that one is “allowed” to have bad days with this illness also allows us to be gentler on ourselves in the process.
Always aim for the best day you can, but be kind to yourself on the crappy ones.