I went to my gi doc yesterday. I’ve lost more weight. The pathology came back benign, and she’s going to talk to the head gi doc about additional surgery for polyps.
She’s ordered more tests… gastric emptying study, and upper gi with bowel follow through. She mentioned referring me to a gastroparesis specialist. She encouraged me to utilize the ER.
I’m going to have my first iron infusion today. Fun, fun, fun lol.
EHHHHHH
I know your pain.
So the exam came back benign, huh? Yeah…this happened to me a lot. I hope you get the answers that you need. This sounds like frustration to me as I was on this route for two years.
Have they done an exam which you eat food with radioactive dye and you wait couple hours to see if you have gastroparesis?
EDS community is extremely knowledgeable on this one so I am more than happy to help you out by asking the community.
If they cannot find anything, EDS often causes gastroparesis so seeing a geneticist will be worthwhile for this one. I am not a doctor but I resonate with your story.
The emptying test sounds horrible! I’m so sorry you have to go through all this. I really hope your drs figure this out quickly so they can actually help you.
The tests coming back benign is a good thing! I’m happy to hear that. I don’t think you wanted to lose more weight though, did you? That isn’t so good.
Thanks for checking in with us. Keep us updated as your tests happen!
Meow lady lol
The polyps were benign… the previous tests indicated gastroparesis and GERD. Before they refer me, I have to have the other couple of tests.
My weight is what it is. I’m doing my best.
I had my first iron infusion. Medically I’m okay
It sucked psychiatrically.