@supernova, how was your apointment at doctors?
Hey. I would love to give a clear response, but nobody really knows what is going on at the moment. I wouldn’t be surprised if they name this condition Ninjastar Syndrome at this point. I need to get a bunch more tests done, including some special types of MRI. I have been procrastinating on getting them scheduled, but I need to do it. I will make my appointments today.
Ok, keep us informed, and don’t loose spirit
I’m glad. I hope they figure this all out. I have an autoimmune disease with no name to it that not even the Cleveland Clinic could figure out. It’s very frustrating. But I will say mine seems to be in remission right now thankfully. I hope you get answers and good treatment soon.
Just made my appointments I hate getting contrast MRIs because I’m allergic to the dye. But I will live. Just gotta take the super special allergy meds that make me angry as a side effect.
Ugh. That sounds miserable. Good luck on your tests.
Good luck ninja. We are all hoping for the best.
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