Participants needed for a study of online social networking among people with schizophrenia or schizoaffective disorder

DX'd - Other
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This posting has been approved by SzAdmin.

Hello, a study being conducted through Hofstra University is currently seeking participants. The purpose of this study is to further our understanding of the use of online social networking tools among people experiencing social anhedonia. This is a symptom commonly seen in disorders like schizophrenia, wherein a person reports taking little or no pleasure from interacting with others.

Participation in this study is estimated to take one hour. In exchange for your time, you will be entered into a drawing for one of three gift cards to Amazon.com valued at $100.00. You will also be contributing to a greater body of knowledge concerning the behavior of individuals with social anhedonia and their utilization of social networking services.

In order to be eligible to participate, you must meet the following requirements:

  • You must have been previously diagnosed with schizophrenia or schizoaffective disorder by a psychiatrist or psychologist.
  • You must be between the ages of 18 and 65.
  • You must be a resident of the United States and fluent in English.

If you are interested in participating and meet these requirements, you can find the survey at https://hofstra.co1.qualtrics.com/SE/?SID=SV_5hBjcxivNOXztwF

Should you have any questions, feel free to ask here and I’ll do my best to answer them in as timely a fashion as possible.

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Pass it ask for too much info…if the us gov can’t hold info…I’m too paranoid to fill this out…sorry…100$ would be nice…FML…

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Does it ask for personally identifiable information - like your name? I think these types of things are typically anonymous - so you don’t need to worry about anonymity.

I encourage people to participate to help move research forward.

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First page ask for a name…can we give a false name?

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Lets see if the researcher poster can respond to this - they might want to modify the survey.

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@SzAdmin They also ask for email, date of birth, city, state, country.

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Lol they ask for so much from the most paranoid demographic …has anyone done this…?

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Hi everyone! The reason that I ask for name and contact info is in case you win the drawing. Other than that, I don’t really have any need for it, so you can give false info if you want. Otherwise, I keep all the information I collect confidential and the identifying parts will be destroyed after the drawing is over.

Thanks for your interest, let me know if you have any other questions and I’ll be happy to answer!

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HI everyone, I’m just posting to give this a bump. I’m still looking for a few more participants, so if anyone is willing to give me a hand, I’d greatly appreciate it.

There were some concerns before about giving your name, but I’ve been told it’s OK to remove that question, so I have. Let me know if you have any other questions or concerns!

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I’d participate, but I live in Canada. Which DQ’s me I gather.

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Doesn’t pass the whiff test for me.

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Unfortunately, yes. I’m also collecting data at the hospital where I work, so in order to keep the sample somewhat consistent, I have to limit participation to people who live in the US.

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I’m sorry that it comes across that way. If there’s anything else I can do to put you more at ease, let me know!

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I refuse to fill out surveys asking for info that personally identifies me. 99% of the stuff asking for this online is bad news. If there was a version that didn’t request this, sure, but I’m not going anywhere near it in its current form.

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Don’t you need to confirm our medical records?

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OK, thanks for the feedback! Do you have any suggestions on how I could change it?

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I wish that I could, but there isn’t really any way that’s both practical and ethical to have people sharing that information with me. So, I have to rely on people being honest about their diagnosis.

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it’s way too long
I got maybe 20% and gave up

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Yeah, it is pretty long, but you can come back and work on it piece by piece if you want. There’s no requirement to finish in one sitting.

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@pselig Maybe consider developing a shorter anonymous survey.

Too lengthy and asking for personally identifiable information (PII) may be indicative of a poorly designed survey.