My parents seem to have a really hard time understanding/accepting that I am a disabled person. I have several comorbid chronic illnesses that really impact my functioning regularly, making it very difficult for me to hold a job or even keep up with necessary household tasks. I do the best that I can and have learned how to work better with my symptoms but it is just extremely challenging.
I have eczema and am having the worst flare up of my life, a full body flare up, my entire skin is covered in blisters, is itchy, and there are huge patches of thickened itchy scales that were even oozing before I started treatment. The itchiness is indescribable. Its all you can think about. I spent literally 2 weeks just in bed all day scratching, crying, couldn’t sleep at night due to it, etc. And then my dad comes upstairs and says i should go for a walk because it’s nice out. I reminded him the dry air is really bad for my eczema and I’m trying to control a severe flare up right now and he just says snarkily “well being sedentary isn’t going to help it either.”
There’s just 0 understanding. It’s the same when he asks me how my job search is going and I’m like look for all of November pretty much I was psychotic, I was depressed in December and now I have this eczema flare up. I’m over here drowning and I feel like my family just thinks I am making excuses. It is so frustrating. Anyone else deal with this?
I kinda understand feeling misunderstood. My situation isn’t exactly like yours but I dealt with what your going through with my ex girlfriend. All I can tell u is to remember to be kind to yourself if you can. That got me through alot of things .
I’m sorry to hear that your parents behave in a manner that’s so misunderstanding and critical, when it’s already really tough for you to be dealing with the disabilities.
I’ve had that same kind of attitude and comments from my parents before (for different cases, even before my current first-time psychosis episodes) and I get how it can really wear you down. I would often wish so much that I could have parents who were supportive and understanding.
My dad is old school and hard headed. He only understands working hard all your life. He worked two full time jobs simultaneously from ages 18 to 65. Both were hard labor jobs.
He’s not understanding my husband and me being disabled. He doesn’t respect it at all.
But he wasn’t a good man when I was growing up so I just try to put it out of my mind. Yet, I still can’t help but have my moments when it really bothers me.
Im sorry you are struggling so much. Eczema can be a horrible skin condition when it is severe.
I used to have terrible eczema and allergic dermatitis when I was younger, especially from 16 years to maybe 28 years old. Sometimes my face used to swell and the skin would be very painful and red and would ooze fluid when I had a severe flare up on my face. Almost like a severe burn. It itched and hurt terribly. Then a few days later the top layer of skin would peel off.
The dr would give me a corticosteroid injection when it was really bad. That provided some relief but the shot could only be given occasionally due to side effects so I would usually try to tough it out when possible so.as to reserve the shot for the worst flare up.
I still have occasional bouts of eczema and dermatitis but very minor in comparison to when I was younger.
You’re right. People try to find fault with you all the time. If you have pneumonia people coddle you. If you have heart failure they say, oh poor so and so. If you have sz they try to fix you and tell you it’s because you’re lazy, unsocial etc. wth? I have a brain disease.
