I got diagnosed initially with undifferentiated sz in 2010. I didn’t have another psychosis until 2020. Thats the only two I have had. but the consultant I am currently seeing says it’s not enough to diagnose sz. and that maybe I presented with sz-like symptoms back then but it doesn’t mean I have it now. I am OBSESSED with getting a label , and I think thats one of my issues,. I might never know what I have for sure. he also said that my case is pretty complex and not one diagnosis will be given to me.
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Will getting the ultimate, unchangeable label, improve your quality of life?
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No. it literally doesn’t matter. I don’t know why I fixate. and why I have the need to categorise everything. but I don’t know why I have this need.
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Anyway, keep repeating that it’s not your fault.
Whatever disorder is plaguing you, it isn’t your fault.
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I don’t think it’s my fault, but it really affects my level of functioning whatever is causing me to be this way. i need to stop letting this take over my life. its been 15 years I just need to move on.
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Oh I remember those, I still have the machine kicking around
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@Ish, You seriously need to ask yourself why you have such a driving, all encompassing need to be, or at least to be labeled, sz/sza? Is it to qualify for benefits in your country? Is it to somehow “fit in” better on this forum? If these are the case, I can certainly understand. It makes perfect sense. But the fact remains that our diagnoses are up to our pdocs to decide and not us. And they will not diagnose us with something that they don’t think we have.
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In 52 years as a psych patient I’ve had a variety of dxes listed on various official forms - schizophrenia,schizophrenia with personality disorder,schizophrenia with disorder of gender identity,schizoaffective mixed type,bipolar,personality disorder not otherwise specified,paranoid personality disorder. I used to be quite obsessed with finding the label that was the best fit.Putting diagnostic categories to one side, I’m someone whose mental health worsens more the more I’m stressed. For all the labels from experts I think my daughter summed it up best. Primary autism with secondary schizophrenia/schizoaffective resulting from the stress of being an undiagnosed autistic child and teenager.
As the neurotypical demands and expectations of life increased, my ability to cope with them decreased. I’d say it was a stepwise decline.
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I’m fixated with my diagnosis as well.
One of my diagnoses is OCD
This is why I fixate and ruminate on different things
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I don’t care much anymore, i just go by how i feel, if i feel ■■■■ i feel ■■■■ but if I’m up then I’m doing well, i like these labels better, Labels like in recovery or post sz, or residual sz, anything that sounds like i am working on improving, I’m kinda now trying to shake the PD labels off but i was glad i could say i have ME as it was hard to get a diagnosis of that and both are pretty much invisible illnesses with me that i am dealing with.
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What is ME? (I hate abbreviations). @daydreamer
Myalgic emphasemyelitis, or chronic fatigue syndrome, i have a moderate case and its getting worse 
i feel like i am degenerating.
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I am so sorry @daydreamer.
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