Has anyone heard of PANDAS/PANS disorder

I saw a therapist for one session. I told her about my “random” & “sudden” onset of OCD at ~8 years old. She asked me if I ever had strep throat. I did very early in childhood. Not too long before I developed all these symptoms. It’s a rare and misunderstood disorder. But She seemed to believe there’s a chance I had PANDAS :panda_face:

Doesn’t matter anymore. But this was always left untreated and I didn’t recover from
These symptoms until I started taking vitamins such as probiotics, magnesium and omega 3 (which are supposed treatments for pandas). :panda_face:

Just some food for thought for me. @pansdisease what does your screen name indicate?? Pans is in the same umbrella of disorders as pandas but has a different root cause I believe.

It’s possible that left untreated it leads to greater mental health disorders such as traumatic and psychotic disorders.

I always knew I was weird. But now i know I may just have been a eucalyptus eating :panda_face: all along. :man_shrugging:

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Oh wow. I wonder if I had this as well

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OCD was the first symptom I ever experienced. It greatly impacted my life. I told every doctor and therapist the last ten years that the first thing, that this was the onset of my mental Health problems before anything else happened really. Only this lady brought up the ideas of pandas. That just proves how it’s not totally understood yet. Maybe I don’t have pandas but it makes sense to me a lot.

I had most of the symptoms. and not all
Symptoms are required in order to have the disorder.

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Was our OCD somatic? My first obsession and compulsion was when I was between 5-10 and I repetitively swallowed thinking I’d drown

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My main symptom was counting. While riding in car I counted poles signs and trees with my toes. (Snapped my toes each time I saw a lamp pole, sign or a prominent tree). I counted in 12s. Plus I would do 3 extra for good luck. I would do 3x4 equals 12 (plus 3 for good luck).

I always followed this pattern and it never ended.

I also would count syllables and letters in sentences. If the amount of syllables and letters were divisible (perfect integer) It would be a “perfect sentence”. I eventually edited my sentences so they would be perfect sentences before I spoke.

This affected my speech greatly and my thinking altogether.

This lead to being bullied and outcasted by everybody in my grade IMO. I had no real friends all through high school and my
Grades suffered from 6th grade and on and went down every year after that pretty much.

OCD really was the root cause for A ton of mental issues I do believe. Could be!!! I would talk to your PDOC first about it. A lot aren’t willing to give this diagnosis out as it’s greatly misunderstood.

…Huh.

Yeah, this looks very familiar. I was first diagnosed with OCD at age 4 or 5. My cousin was also diagnosed around then. We had just both been sick at the same time before then. I had developed a need to close every door, and he had developed a need to open every door, and we kept walking around the house closing/opening doors after each other. I barely remember it, but our parents found it endlessly amusing and have told the story many times over the years.

I suppose its a rare disorder. But maybe it makes sense that the prevalence would be higher on a mental health forum given the mysteriousness of it. I think if i had it, i developed it before the term “PANDAS” was even coined for the first time. It was not the late 90s it was first described. So it’s all pretty new to everybody. Ive said I Can’t really blame my parents or doctors if they didn’t fully see the “signs”. As no one knew much about it until relatively recently.

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I do appreciate that my parents noticed immediately and had me in therapy/special classes right away. They didn’t have a name, but they knew I was “different.” I don’t know if it was this, or some other developmental disorder, or just the early stages of my brain tumor. I think it’s interesting how so many neurological conditions have overlapping symptoms. I suppose it doesn’t matter, in the long run, what caused it. The treatment was the same, and I received it.

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Thats all true I’d agree. I know what works for me now and thats the most important part. And Yeah its pretty much been swept away under the rug since the first month my therapist brought this up. It really doesnt matter anymore :smile:

I do find it intriguing though. My parents tried getting me help in high school but i refused it completely. Then they got me help in college but i was at an age i had to be willing. They’re far from perfect but i think they did their best to love and care for me in times of adversity.

Also i Kept my OCD symptons in elementary school/middle school a secret due to the nature of it.

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Starlet was like this. So insistent that he could do it on his own, even when he was melting down to try to keep up. He FINALLY let us get him accommodations his senior year, and in college.

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