Hello.
I have been like many of you… suffering from schizophrenia. However, at least for my case, it’s been rather very light one, and what brought me to create this thread is actually the schizophrenia drugs.
I’ve been on Zyprexa for about 4 years. It didn’t give me much side effects except extreme hunger and making me sleepy/drowsy throughout the day. For most people, especially overweight, the hunger urge can be a real concern (diabetes, etc.). For me, I gained some weight, but it was hard fight not to gain huge weight. So somehow I gotten along with it.
However, one day, the pdoc has decided to move me to a different drug, saying the Zyprexa effect has diminished. I couldn’t imagine what would happen, so I agreed.
Then I was put on PERPHENAZINE injection, which is typical (not atypical) antipsychosic. The side effects were horrific. I practically couldn’t think, couldn’t focus, couldn’t even feel emotions towards anyone. I felt my brain was ‘stuck’. All of this plus severe insomnia. Was into very much ‘zombie’ state. So after it’s effect went away, after few weeks, I immediately demanded new drug. I was given Invega orally.
Unfortunately the effects weren’t much better. Pretty similar. I felt my mind is stuck into a sort of bubble, can’t think straight, couldn’t sleep at all. I could focus, but I went into depression because I coulnd’t enjoy anything, except slight enjoyment from food. Pretty horrible as well…
So I asked new drug, I was given Seroquel, which I read has slighly milder effect on the brain.
It made me extremely tired, but after days I slept 2-3 hrs night on prev. drugs, I could finally sleep. And it’s effect is indeed only slighly less harsh than Invega and the other drug. Though it feels like a constant drunk feeling during all day, even tho I took it the night before, which isn’t very pleasant, but at least hardly I can think sort of straight. However, it did give me an fast heartrate, which I never experienced before. Still an annoying zombie-like feeling that doesn’t go away though.
So that’s my experience, but how does that relate with the topic of this thread?
It relates so that I’m determined to find a cure, or help create a drug, to take care of schizophrenia symptoms, without any or with very little light side effects.
The side effects are so horrible, at best one will gain lots of weight with very increased risk for diabetes and its complications. At worse some meds will put one into a zombie state, without any enjoyments, without being able to think outside of him/her and enjoy thinking like a normal human being. What those drugs do, is that they completely block some dopamine and other chemicals signals in the brain. The drug companies don’t care about our symptoms. They care about their $$$. The drugs may lessen one’s delusions, but if the disease is light like with my case, and considering the horrible side effects mentioned, I would prefer being without any drugs than on those side effects which may ruin one’s life literally… Dopamine is a chemical which causes enjoyable and nice feelings through the mind on the body. From my understanding, these drugs block those feelings. The drug companies aren’t very considerate to create drugs that just balance those chemicals, if excessive, into normal. No. They completely block them!! So no wonder many many people define their conditions “zombies”, because a human being without any enjoyments is like a dead person. Or indeed a ‘zombie’. The entire essence in life is to enjoy and make others enjoy. These drugs hurt this severely…
And I’m not talking about extreme enjoyments like from food or sex. I mean the every second in life the good feelings our bodies produce… and the enjoyments our thoughts produce… these are what those drugs take away from us.
So I decided not to stay lightheaded, even tho I sort of am with the drugs effects, but I’ll fight this. No I can’t fight the drugs harsh chemical effects for sure. What I can, is to help create much better drugs, for me and for millions of others. And this is what I’m determined to do.
Please consider joining my struggle, for the sake of yourself and your loved ones.
Let’s make this thread useful, by recommending substances that may be helpful in easing or diminishing the symptoms of Schizophrenia. Or, show your desire to gather together, so we may create much better drugs alternative ourselves, not being dependant on the drug companies. Yes that is possible if we get a lot of people. Of course, it is NOT recommended for anyone to stop drugs, until proven otherwise.
If you would like to suggest natural substances, that may combat Schizophrenia, please write them here.
If you’re willing to gather together to create a much better chemical alternative, for instance such that will balance the chemicals in brain instead of completely blocking them, also write here.
Thank you for reading.
-Worried