I’m not sure if anyone cares, i guess you’d have to live it to really care about it, all i can say as a moderate suffer and someone with serious mental illness, the GP seems to be not able to treat me and are passing my illness off as psychological, for me it is not fair at all bc the psychiatrist i currently has has failed to address all the issues i have requested, this makes me believe that my Psychiatrist & care team is incompetent and neglectful of my care i am very disappointed by this and let down and it seems to be making matters worse, sorry for the rant but i am very upset & disturbed by my care team who failed to follow up on me when i was on the brink of suicide last week.
basically, its not a basic thing, its very complex & despite it being the modern age they still know very little about it due to poor funding, for years the medical profession has been pushing the wrong rhetoric with faulty research papers to try & justify what was a very detrimental treatment for it, forcing patients to exercise which made their conditions much worse.
The research papers have been amended after about 30yrs but there is still no real treatment, Its very disappointing this video highlights the problems and cuts through the stigma of the illness with first hand accounts, proving how debilitating it is and why the cfs/me community need extra funding to look more in-depth into this illness in order to get better treatment.
Yes, The dr’s, seem to treat it as psychological issue with me but I’m not so sure, idk if it ties into my diagnosis, i think its a separate issue but it might be linked (in a slight way) its so hard to tell but it’s definitely affecting me physically…
I posted it here bc it can affect people with mental illness more than the average person and it affects me mentally, it makes me depressed and a bit suicidal sometimes in extremes.
I don’t understand. You are telling them you have it, but they are saying you don’t? You don’t believe them? Have you gotten a second opinion?
As far as I know with this illness, they treat each individual symptom. There is no general medication. They use antidepressants, ibuprofen and counseling mainly.
If they are telling you that you don’t have it then try for medical advice from another doctor. It’s worth a try anyway. CFS is difficult to diagnose as it doesn’t show itself in blood tests or scans. I would also try to build your stamina through gentle exercises and techniques that improve energy and depressions. Hope this helps.
Hey SPF, It might sound like they are saying i don’t have it, but its obvious that i do, they have referred me to the centre for integrative care to see if that can help, my appointment is on the 6th January.
I had blood taken last week and i got the results today, its frustrating when all indicators are fine and i’m stuck feeling completely broken, the nurse asked me if i wanted my blood taken again to check my B12 but i am kinda losing faith in the health sector.
The last time the lady said i had health anxiety and that kinda bummed me out as well (another label) seems like i am fighting an army of crap not just in my head, its spread throughout my body.
The reiki has been helping and I’m getting my 3rd session of it tomorrow, i know people seem to have a problem with it but each to their own i say, why diss something if it helps just bc you don’t like it (seems pointless) if it helps then that’s the main thing i say.
i am very disappointed by this and let down and it seems to be making matters worse, sorry for the rant but i am very upset & disturbed by my care team who failed to follow up on me when i was on the brink of suicide last week.