As regards pdocs, do you believe we schziophrenics are "Experts by Experience"

do you believe that…

More like “informed patients” .

2 Likes

Most definitely. Drs. Don’t really understand like they should because they haven’t experienced it for themselves.

3 Likes

I am not expert, i’m more novice

1 Like

I used to learn through personal experience in all things including sz. now im better at learning from others and no longer feel like I have to experience things for myself

1 Like

I feel im an expert on mental health and the denial of a mental peoblem.

“they haven’t experienced it for themselves”
That is real,but this criticism is not enough to explain and understand unknown facts for them ,your task is to describe the facts to them as you see and perceive without exaggeration , let unknown things be known for them, because they can not know these facts by their observations !

1 Like

I don’t know. Sometimes, I guess. We often lack insight and the doctors have seen hundreds or thousands of patients.

I’ve had more than one prescriber be surprised when I mentioned that antipsychotics were terrible medications to be on side effects wise. I’m continually surprised by the things healthcare professionals just don’t seem to be aware of.

2 Likes

I think I’m an expert on my own mental health as in I know what’s up with me. But not with anyone else’s

3 Likes

I think that’s a very good way of putting it.

Yes in a way we are experts. I never would have thought of that. Maybe that’s why my pdoc always asks me what I want to do as far as my meds go. She always says “I trust you” and “you know your body”. I always have to say I defer to her because I really don’t know how I’m feeling and don’t have a clear idea of what I’m needing.

All disease are offensive on the physical inviolable
While the Sz is a specific offensive on the psychological inviolable

You can be expert at eating and still be such a bad cook that you manage to burn water. Expertise doesn’t always cross over from one realm to another.

1 Like

Absolutely not. An ‘expert by experience’ is, in effect, a ‘lay expert’ - which is an oxymoron. Just because someone has lived experience does not mean that they have ‘expertise.’ One’s experience of mental illness does not make them an expert on the mental illness of others.

An actual expert is someone who acquires their expertise, and therefore earns their expert status, through a process of learning rather than simply having the status ascribed to them. The acquisition of professional expertise begins with the successful completion of training and education programmes approved by the profession itself.

Simply having experience does not make one an expert.

1 Like

Treatments vary in success from patient to patient, each patient is a unique case, and nobody is more familiar with your unique brain than you are. So it’s important to make informed medication decisions based on your history with them. You still have some say in it, even if you are sick.

That doesn’t make you say, a professional expert who has seen the disease manifests in many, many patients and has seen treatments work and fail countless times before.

This topic was automatically closed 90 days after the last reply. New replies are no longer allowed.