I don’t know, gene therapy has been tried, and it failed.
I forgot to mention, very high doses of ibuprofen every day, as an anti-flammatory. And also, many get lung transplants, and are forced to raise half the money on their own.
@Loke my daughter is doing well, and no major decline in health since having my grandson, a perfectly healthy boy. unbelievable.
Even after having him, she’s still a size 0. Weight has always been a problem. when she was carrying him, it was all baby. good size too. She’s able to be a stay at home mom. He turned 1 year old last month. The only major concern is her liver which she has taken medication for all her life. I was told by one doctor, a long time ago that she’ll need a liver transplant one day.
I can’t remember if I told you, umm, he had to go thru major surgery to replace the shunt in his head, it was malfunctioning we found out by his eyes. 17 staples in his head, and 20 in his abdomen.
He came out well, he’s very strong. he sleeps a lot now. thanks for asking.
it’s so hard for this population, no social activities, well, like all of us, we’re all stuck inside. We used to be doing something every day.
can’t wait to go out and have fun again.
thanks for prayer.