Most LAIs are way too expensive and clozapine’s side effects are unacceptable
I have been on clozapine for more than 15 years. It’s a good med. It’s sort of love and hate thing. I love the calmnes it gives me but hate sedation that gives me.
Best regards
I completely agree with you coco. This guy is ancient btw…
I’m on Vraylar. I would only take Clozaril/clozapine if I could get a job or in theory or something.
What’s your reasoning behind that?
Near impossible to find criticism of the use of the drug online… And yet it almost ruined my life.
There is a disconnect.
I didn’t watch the interview. Just a general response, I guess.
The blood tests are a factor. The side effects can be rough.
They say Clozaril is the gold standard for Treatment Resistant SZ. I was told I might be TR early on.
My delusions are always there, but the caffeine might be the culprit. I’m trying to quit or cut down significantly.
Hear hear! That’s some evil shxx, yo.
i found a paper where a doctor said i had treatment resistant sz in a court document to a judge. but he was wrong. the medicine works very well for me. not 100% but i doubt it works 100 for anyone. clozapine was hell.
medicaid covers them for me. i havent been on one tho in a long time but might go back to em cause i like it better than taking a pill everyday and i always wanna stop my medicine. i like to forget im taking medicine which the shots are easier to do that cause i could get a shot only every 2 months. and theyre a lot better than they were when i took em 14 years ago.
Think on all those Schizophrenics who dont feel that they are sick or are to forgetfull to take pills. We owe there heart broken families to have as many affordable long acting injections availibly. The USA should approve Clopixol and Depixol LAI that comes with the same cost as Haldol.
And please remember that some of our fellow sufferes respond so badly to most of the meds options of today. So even tho Clozapine blood test cost 1000s of dollars each month it should realy be suggested and offered to those very mentally unwell persons.
Clozapine side effects are rough
But since my dose has settled and I now take the oral suspension fluid, is much better
I’d say after a year the weight gain stops and the vomiting has been solved by taking the liquid form
Constipation is bad but I take three different laxatives to manage it
Monthly blood checks are good as well after being weekly and then two weekly
Regret dismissing this med for so long over side effect fears
For me a few things have been bad but are well managed now
Blips are now fewer and further apart