Good for u! Embrace that openness!
Everyone in my family knew but we just didnāt talk about it much. I wish we would have looking back on it now.
Basically I donāt talk much about it with family members any more because the story basically doesnāt change. The best I can ever say is Iām getting better. The day will likely never come when I can say that itās gone. They pick and choose who to tell it too.
My family knew from the beginning that I had sz then later sza. But they didnāt talk much about it nor were they supportive. But, when I lived in the psychiatric boarding home with nurses and staff around the clock for 9 years they became understanding and accepted my illness. About 5 years ago my Dad had Parkinsonās dementia and before he died three years ago he looked at me in a lucid moment and said: āI now know how you feel.ā Now my sister and brother-in-law and my two nephews are close to me. I phone my sister every day and if I start getting sick she is the first to realize it and tells me to go to hospital. She does lecture sometimes but we always say we love each other before we hang up. My friends and acquaintances seem to accept me as I have no problem now discussing my illness as I am an advocate for the removal of stigma associated with sz.