Well, i spent 11 days in the hospital and was put back onto the Lybalvi/Zyprexa. They tried titrating onto Abilify but determined that it was ineffective. I had gone off the Zyprexa cuz i was eating everything in sight, but i decompensated and began hearing new voices and not sleeping, and my therapist called the Mobile Crisis Team to my apartment. Then the police came to escort me to the hospital.
They wanted me to do ECT, but it was a logistical nightmare. It would’ve involved living in Anchorage (350 miles away) with someone to watch me after outpatient treatments, would’ve taken 2-3 months to complete the course with additional monthly flights for maintenance treatments, and i would’ve needed someone to watch my dog for that whole time. Then, add in keeping the rent going on my apartment and storing my car in a heated garage (it gets to -40 F here and if a car isn’t kept warm or turned on once in a while, it will die). I just didn’t have the resources to do ECT.
My inpatient doc has told my pdoc that as soon as Cobenfy(KarXT) goes into production, she wants them to do a fiscal grant for me to go on it if Medicare won’t pay for it. So there’s hope there.
They wanted me to stay a bit more in the hospital today, but i told them that there was nothing more they could do there. I was no longer a danger to myself, altho i was a bit hypomanic when i left. I can handle that. They told me to come back anytime that i started doing poorly again.
My primary doc has agreed to let me restart the Mounjaro at the lowest dose since I’m taking Zyprexa again. Maybe that’ll prevent too much weight gain. I’m up to 156 lbs, a 12 lb increase from 3 months ago. I promised the pdoc that i will give the Zyprexa a fair 30 days to improve things, but there’s no guarantees after that.
I don’t like this whole thing and wish i could go back to my clozapine days, but hopefully the KarXT will become available soon. My pdoc said it’d cost about $1850 a month here. I sure hope it helps. These grandiose delusions that come and go are, for me, dangerous, as they usually involve me believing my death is necessary for world peace. Stuff like that.
Anyway, if i learned anything, it’s that going off meds solo is like dancing with the devil! And i just can’t wait to find something that works without either weight issues, heart issues, or efficacy issues…
