its hard enough trying to stay on top of this illness without the added pressure of worrying about what people think if they think you are well,
this may sound stupid but i think it is a big problem for me and i guess maybe others as well.
as you all know i am pretty stable on a good med and to the normal person i look like an ordinary person without any problems, but i do have problems, problems that they cant see, it is an invisible disease with me and just because it is not apparent that doesnt mean that there is nothing wrong.
i go to church and volunteer, people see me all the time and i seem ok at college no-one would suspect unless i told them and this makes it even more difficult, i have an illness but it is invisible just now because i am stable and high functioning.
i worry that i am committing fraud and that i will lose my home and benefits, i also worry about what people think about me and why i dont work, i worry about what would happen if i met someone and how they would take it when i told them, i also worry about using my free travel card in case i get questioned,
and i dont want people thinking they need to give me special treatment because of it as well.
i also get penalized because my care time think i dont need a nurse and sometimes i do but they dont care about me that much anymore.