Who deals with somatics too please?

Ok, so I have them a bunch… They are very painful too. Not really a sign of sz, but maybe anxiety and negatives… I was once diagnosed with conversion disorder as well…
But this is something, that stops me from being more active…
Please, share, who else was having them too? Did you get better on them? Can ignoring them and distraction can help?
Mines are so strange, that there’s no med for them… The aps never helped on them. I don’t seek any more meds against my somatics anymore. I am just worried, that I have them since kid… I wonder if efforts and going out from my anxiety can help?..
Yeap, am also still too focused on my illness, on this negativity, which probably worsen the things, but I try here…

I used to something terrible till I met a Dr that cured me. First she told me even hypochondriacs get sick then she listened. Then she tested me. Every complaint, every worry. What it all boiled down to in the end was stress and anxiety honestly and not taking good care of myself. Overeating didn’t help me feel better either. So now I try to eat right, keep my stress down, tend to my anxiety and walk a little to combat the stress and anxiety too. But I went from having every possible symptom and disease to now IBS ,anxiety, SZA and I think that’s pretty good. You worry and fret a fair piece from what I can tell and that can’t be helping you. I hope you get to feeling better Anna1

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Ok, thank you leaf for the message. In fact, now I try to limit my stress yeap… I tried many meds and they never reduced my fears nope… So I should find smth else. Its a bit scary to be left alone like this with my fears, I still don’t believe in myself, but i’ll have to do it. Even my survival demands it. To finally start to believe in myself.
So you were somatic too, @Leaf? Yeap, I guess the real cause is stress. But I push myself now… I make my walks, I force to socialize etc etc…I just hope it will end up by paying… So, the trick is still efforts? Yeah… Also my mind feels like asleep from so much despair through the years and isolation. It feels like I cant think, despite the fact that I think still and that I am even rational… I just have this feeling to be dumb and to not ‘‘feel’’ my thoughts, strange…
I still do less that I would like to, but I try not to blame myself anymore for this, I had it quite hard enough already…

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You’re welcome. Now don’t go being hard on yourself at all. I know you’ll try what you can to reduce your stress. Have a lovely day, it’s always nice to hear from you.

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@Leaf, its not so strange, that my aps never reduced my somatics, isn’t it? Yeap, ill work here now on them…
What meds are you on now, do they help? I hope you are fine too, hugs, bella!!!

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Oh I’m sorry your meds aren’t helping. Maybe you don’t have the right combination of meds yet. I take quite a few but they work well together - Saphris, Rexulti, Topamax and Cymbalta. I kinda have all the bases covered with those. It took many, many tries to come up with that combination but I like it and I’ll stick with it for awhile now I think. The only think is sometimes I still get depressed but that’s okay I’m a hard case for that this time of year. It’s not too bad yet. Anyway, what meds are you taking?

Nope, I tried all kind of meds for ten years… I spent those gten years just trying and listening to the docs… They never really helped. I was on bigger dosages of Zyprexa, but now I am on 5 mgs and its more human like this… I was diagnosed once as borderline in fact but we’ll see. One doc told me the somatics are not a sign of sz, but other disorders… And he told me also, that I tried way too many meds lol :confused:

Also was diagnosed with conversion disorder around 2017. Diagnosed with fibromyalgia although I recovered from paraplegia. Pain continued, seizures started (almost exhausting me and killing me), and on March 2019, I was diagnosed with autosomal recessive titin myopathy.

So…my answer to a lot of stories I see on The Mighty about “not diagnosed, in pain for 3-4 years, etc.” is to seek a doctor that understands you.

Seriously, I would have treated my illness a little better or prepared for it if I was diagnosed with it at the right time.

@anon10648258, the cause of the conversion disorder is mental, nope? In my case it is… I think its because of too much stress… Yours got better with what meds, if you don’t mind to share? Did you have to put your own efforts too?
Take care :wink:

I was misdiagnosed with conversion disorder, but I was confirmed with a general titinopathy (titin-related muscular dystrophy) without a subtype, which is a rare genetic disorder.

So…no, the pain never got better for me. However, I’m hoping that this is the case for you.

Oh, I hope you’ll be fine too… :slight_smile:
Yeap, me I have this conversion disorder but I am way too anxious… Or in some other moments, my energy gets low too, I feel smth bad in my feet so I have to lay down, but the way for me is to waken up my ‘‘sleepy’’ brain then.

Are you in pain? Or just anxiety?

Its an anxiety, but I feel some pain from it physically, yeap… I can be scared per moments, that i’ll lose control and i’ll go mad or bedridden to bed because of my sz…

I wonder tbh if an antidepressant wont be a better choice for my somatics?.. I still take my Zyprexa. I take it since 3 years and it never helped… It would have helped till now, yeah…
But yes, maybe I need smth else in addition to my thymo and the zyprexa… I cant do it just with Zyprexa, I don’t live on it :confused:
Today I had a terrible day, I was literally suffocating by anxiety, people…And this, this wal very painful, yeap…

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I’m sorry you had a terrible day with the anxiety from the people and all Anna1. Perhaps an antidepressant would help after all.

People, is it common to have somatics in sz? Till the point, that you cant be even functional? But I tried all the aps here on the market and none ap didn’t make disappear my somatics… Ok, maybe to panic because of having them is unnecessary too, but I wonder if I can get better on mine with efforts? Like what efforts, activity, meditation maybe?
Can I hope, that they’ll disappear one day?

I suffer with somatic disorders as well.
It gets much worse when I’m psychotic.

Mine is mostly from anxiety I think…Plus my brain was too numb for years, it plays its role too.
Are your somatics bad wave? Me, I cant even call a friend on the phone right now, I am anxious and my hands are weak…
Whats your doc saying about your somatics, what should we do to get better?

So well, people, nope, my 5 mgs of Zyprexa didnt work… I lost lots of my calm… On the smaller dose, I start to pace and I start to think, that I can die from this illness… It was severe :confused:
So I came back on 7,5 mgs. That’s the truth here… I’ll continue having my somatics and I even wonder if they are not here partly because of the Zyprexa, but its not sure…
I should finally accept my fate yeap… Continue with the meds and move more… Maybe my numbness from the meds is so present, cause I don’t have much social contacts and I am almost sedentary… Today I feel still a bit numbed by the 7,5 mgs. But this was a good dosage for me before… 10s were too much for me… Because of the negatives etc… I have an illness yeap, but its not a job to think, that you can die from it, so I take a proper dosage now…
Ill try to fight for the rest in order to feel better, but I am not sure i’ll recover yeap… Its been three years that I am on Zyprexa.
Hugs all!!!

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Yeap, @Leaf, to be worried to such a point is more than an anxiety… I don’t have this diagnosis for nothing, yeap, its sz… :confused:
But is it normal, that the meds doesn’t help me to recover on 100%? I guess so, isn’t it? We often should make efforts, isn’t it, how was it for you? Take care!