So, I’ve been going a bit crazy lately. Not quite psychotic, but definitely not healthy. Not paranoid anymore, almost no negative symptoms, but my ADHD has also been insanely difficult to manage. The Rexulti has me doing a lot of really reckless things, especially with money. It’s pretty scary.
So I talked to my pdoc last week and she tapered me off the Rexulti and back on the perphenazine for now. Then next appointment in 2 weeks to decide if we want to try adding in a mood stabilizer. I don’t think I need a mod stabilizer, though, I just need to not be in extreme pain 24/7.
Anyways, I had an MRI with hip arthroscopy and fluoroscopy and it showed that (likely due to repeated dislocations) I’ve got excess bone growth in my acetabulum (the socket part of the ball and socket hip joint) causing severe impingement of the labrum. It hurts like a ■■■■■■■■■■■■■ ■■■■■ and I can barely walk or sleep. It’s miserable. I’ve been too close to suicidal over it a few times recently. Luckily I have an amazing doctor.
My heart failure is getting worse, though, and no one can figure out why. I finally got the call that I could make an appointment with the (only one in Indiana) specialist cardiologist I’ve been on the wait-list to see, so that appointment is in October. Hopefully my feet last that long. They’ve been turning black a lot lately. Getting warmer out, though, so that will help.
Meanwhile, Mx LED, myself, and Little LED were all diagnosed with autism. My partner and I suspected we were for awhile, but we had zero indication Little LED was until she started public school. We just thought she was ADHD.
Anyways, pain is better managed a bit, so hopefully I’ll be able to come on here a bit more. When the pain gets bad it messes with my vision, though, so I can’t really read. It’s lame af.