SzAdminThe Big Lebowski1d pixel
pixel: I believe that’s per forum (Family and DX’d). So, $200/mth or $2400/year. That’s a lot of money to go out of pocket to have people like @StarryNight slag you non-stop.
Yes - that is correct. And we really don’t have the money to bump it up to $300/month ($3,600 a year) for a mixed forum that would be only where family and diagnosed converse.
We get no money from any outside organizations. Advertising sometimes covers the costs, but for most of the time over the past 5 years it hasn’t.
Thank you so much for proving my point. If you don’t want me here then let me leave. I don’t have schizophrenia. My mom has schizoaffective. You have made me completely confused and I don’t know what to think.
Am I being slandered for something? I may be struggling with deciding on a path for medications and treatment. I’m not anti-psychiatry. I have Bipolar1 not Schizophrenia. My mom has Schizo-affective. I don’t know why I’m being quoted I have barely posted on the family forum.
There is no control built into Discourse allowing @Szadmin to delete your account and all of its posts once you’ve passed a certain point. The best that can be done is to anonymize it.
Well you have to log into the family forum separately, so why am I seeing this on the schizophrenia forum. Is it so bad that I don’t have schizophrenia when I was misdiagnosed in the past? I mean OMG.
I don’t need to anonymize my account nor request it. I just want people to stop blasting me. I am not anti-meds. I have off days but this forum has unfairly set me apart and IDK why.
I have an idea that discourse.org is hosting this software package, so the moderators and szadmin are just relaying the functionality of discourse.org.
but remember, they’re only paying $100 a month for the service of hosting this software, all these users, etc. the moderators are simply volunteers of this ‘mess’ or collaboration, depends on how one looks at it
I’m already feeling marginalized, and now I feel like I have less of a reason to express myself on here. I wasn’t asking anyone to agree with me but it would be nice to feel welcome on a forum I’ve been on for awhile. I am not putting anyone down, I don’t attack people, and I expressed a few opinions that I assume are unpopular, I never advocated someone to stop taking their medication.
I expressed my personal desire to be off medication as a choice. It frustrates me that my internal battle is more existential when a person justifies shutting me out for a belief that I expressed. I’m an adult, I’m not disabled. Don’t I have a right to advocate or at least self-advocate informed consent? I’m surrounded by this entire system and it is making some advances. I personally feel that advocating patient rights and informed consent helps erase barriers to treatment and access to resources. You can say I’m anti-meds but I’m not. I regret ever posting about my personal struggles, and if it justified more rude comments based on some bias against someone who needed a place to express herself, a forum for her voice to be heard.
So far no one has recognized that I’m not a joke. I am curious and questioning the psychiatric systems for constantly marketing pills and not seeking to cure people. I demand a cure for schizophrenia.
It may not be curable in our lifetimes. Right now the best options we have are medications + CBT + therapy for those who can get all three. Plus the usual staples of diet, exercise, and a recovery-oriented attitude. Of all the supplements I’ve tried, sarcosine is the only one that works. And by that I mean you really notice how well it works and how much you slow down in terms of cognitive processing and negative symptom drag when you run out of it.
It would be cool if they came up with some sort of stem cell therapy that fixed everything with one treatment, but that doesn’t seem likely for now.
I’ve worked in the technology field for a long time and we have a saying that relates to getting things done. The saying is “Perfect is the enemy of good”. What it means is that generally its better to quickly seek out a “good enough” solution to a problem than taking a very long time (or potentially waiting forever) for the “perfect” solution.
Sure - we all want a cure, but the brain is the most complex organ known to man, and a cure for everyone may not come sooner rather than later. In the mean time - look for the “good enough” solution - which as @shutterbug states accurately is therapy combined with medication and healthy habits.
