Schizophrenia.com

New guy looking for advice

#1

hey whats up ppl my name’s emanuel , was born in lufkin tx march 8, 1989 but have lived in fort worth almost my entire life,

am 26, am the youngest of 2 brothers and 2 sisters including myself, starting experiencing first schizoprehnia epsiodes at as soon as i hit 18 and has gotten worse along the way, not the psychotic type, dont hear voices, no hallucinations, no dangerous thoughts etc,

just have trouble thinking and mood issues and maybe a bit of ocd, anyways thats a bit about me, any ideas or suggestions is greatly appreicated and hopefully helpful as well as beneficial, thanks in advance and i hope i enjoy my stay :slight_smile:

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#2

welcome to the forum! I find solace and support here and I hope you do the same.

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#3

Welcome! Glad to see you!

#4

Hi. Welcome fellow Pisces, lol. My birthday was March 11th. I’m not sure what kind of advice you want but here’s what worked for me. I was diagnosed with paranoid schizophrenia when I was 19 in 1980. My case was severe at first. I spent a year in a group home in 1980-81 and from there I was put in a locked psychiatric hospital for 8 months. I suffered horribly those first two years but now I’m doing OK. My symptoms have lessened considerably in intensity. I live on my own, I have my own car, I work part-time and I take online college classes. But I owe my recovery to unwavering family support, taking my medication without fail, keeping most of my psychiatrist and therapist appointments, keeping an open mind to suggestions and ideas from people who are trying to help me, and not fighting the people who were there to help me, and staying off street drugs. I had a bad crack habit in the late eighties but I got clean in 1990. Anyway, if you had seen me in 1980-82 you would never have thought I would be where I am today. Part of my relative success is luck but I also put a lot of work into my recovery and I cooperated with my famiy and my doctors when they made suggestions. Anyway, I hope you get something out of this, good luck.

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#5

Moodiness can be many things but I would try supplements for clarity and mental strength and see if it helps. My sz didn’t really become apparent until late 20.

#6

You might talk to your doctor about Sarcosine. It seem to help in the negative symptoms that you’ve mentioned, and there has also, I believe, been research that suggests it helps with OCD.

#7

Why are you so big on Sarcosine? Seems like a waste of money to me. If it’s so great, why has no pdoc ever recommended it to me?

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#8

Just that its pretty cheap to try and the research looks reasonably good (out of Harvard medical school, etc.) - and there have no medications yet out that have shown benefit on the negative symptoms of schizophrenia. And - people seem to report success with it.

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#9

The success stories, if I recall correctly, are fleeting in that the benefits of Sarcosine don’t last long. I asked a top-notch psychopharmacologist about all these supplements a few years ago, and he told me to save my money.

#10

Some people here have been using sarcosine for years and still claim it really helps them. And we had a scientist review the data and she said it looks pretty legit in terms of the results on a few.

And - lots of people seem to prefer the idea of vitamins, amino acids and other supplements over (or in addition to) the medications.

#11

I guess. I’m skeptical of it. Then again, I don’t really have negative symptoms and have no reason to care about the stuff. When my doc says it’s a waste, I trust him over anecdotal success stories. Like I said, if it’s so great, why isn’t it FDA-approved by now? And why aren’t pdocs handing the stuff out like candy? Something’s missing.

#12

generally I agree its good to be skeptical. But in this case there seems to be both quite a bit of research data (quite a few studies over past decade) and also positive anecdotal stories. And the FDA doesn’t approve supplements - so they’ll never “approve” them.

#13

Fair point. However, there is also, on the other end, no quality assurance. This stuff could just be a placebo - for all people know they are getting wheat germ or something. There was a huge report on major news outlets about this stuff a week or two ago, where the investigators sampled “supplements” like vitamins and such from major pharmacies, Wal-Mart, etc, and a whopping 80% (!) were found to have ZERO of the advertised ingredient. My point is, just because the label says so, doesn’t mean you are getting it. Not suggesting anything fraudulent, but it’s still quite possible that a lot of it is the placebo effect.

#14

Just one example:

#15

Man , I hit all bases reasonably cheap , fish oil , b vitamins , choline , etc are cheap , I don’t go over the recommended daily amount though.

#16

Welcome. You find support here.

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#17

It’s a struggle at first but you can always learn to think differently. Ocd in thought is a tough one at first but if you just try to refuse obsessing you’ll eventually come to see all the different thoughts and perspective you can take to in any scenario.

Writing or doing art will also give you something to focus on and take you away from yourself.

Consistent sleep goes a long way. I need 10 to 12 hrs to stay stable. Even with that I still have bad days.

There is nothing wrong with taking psych meds for various issues. Get in with a doctor and let them get to know you. Be honest and you’ll become trust worthy then they’ll help you with any issues you might have.

That said a lot can be done on the psychological side of things to control symptoms.

Knowledge is your best tool. There is extensive information out there. This site is also great a lot of good stuff cycles through here and you won’t feel so alone in your struggles.

Welcome to the forum.

#18

But the research studies are placebo controlled and double blind - so that takes the issue of “placebo response” out of the equation.

and another…

#19

Sorry, but a 60 and 20 patient trial, respectively, each lasting 6 weeks does not prove anything other than more investigation is needed.

#20

Here is what I typically tell people that are new, my advice from 13 years of research and experience:

  1. Are you drinking, smoking, smoking pot, using any illicit drugs … STOP! If your addiction is a level that it would be harmful to quit ‘cold turkey’ then get help quiting.

  2. See a medical doctor ( a general practitioner [GP] will do) but a specialist in orthomolecular medicine is better . Get a physical, and full blood panel done looking for cancers, nutritional deficiencies, hormonal issues, heavy mental or other poisoning.

  3. If you get a clean bill of health from the medical doctor, then see a psychologist and discus your issues. He or she may refer you to a psychiatrist. Continue seeing the psychologist as well as the psychiatrist.

  4. Eat nutritiously and get plenty of exercise, spend as much time as possible in nature and not in doors.

  5. Find and attend a non-judgmental and open group of spiritually inclined people (they can be atheists) to spend time with and develop skills in meditation and mindfulness techniques.