Movement disorder query

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1

I am worried i have td now

i clear my throat all day every day
i have been pouting naturally a little bit
i have been frowning more in the last few weeks = my husband constantly asks if i’m okay at the minute

these are the things i’m aware of
the other things like clenching or giggling side to side with jaw have felt entirely voluntary ( i burned my mouth & i have toothache - i decided to swing my jaw )

I don’t know about the onset
just think i should get a movement test again because it has again become concerning
i think i should do this before getting botox

2

I thought that TD was all about arm movements. Your post prompted me to look it up. I can’t tell if it’s the hypochondriac in me or not, but it has me worried that I may have it too. I do this weird jaw clenching thing on one side and blink very frequently. The jaw clenching has been going on for months. My dad visited me this summer, and he thought I was doing it because my mouth was sore. My sister thought it was because of my tremors. I don’t know why I do it. The blinking is just plain annoying. Could that be TD like yours?

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3

I’d talk to your psychiatrist guys. TD shouldn’t be taken lightly. If you suspect it then have a chat about it with your psychiatrist.

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4

What can it do to you?

5

I don’t know if it is TD for me or for you

it’s a possibility for both of us. I have no idea how it starts - it can’t be full blown from the start or is it?

i sometimes absentmindedly do ‘milkmaid grip’ (the names of the symptoms are horrible)

6

it can be horrendous but the meds have the only answer for us
i dont’ know how bad it gets in general

i think socially it’s very difficult and there is probably i think some pain involved if the movements are repetitive

7

thanks everhopeful

seeing nurse tomorrow… so i will ask her then.
going to ask for another AIMS test

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8

Makes me wonder if I had this when I was on Vraylar, I’d move my jaw involuntarily to the side like a twitch. Also my tongue would roll and fold involuntarily and I wouldn’t notice until a few minutes after doing it.
Edit: I also would tremble, my hands would especially.

9

Can it cause your neck to nod back and forth? I have been doing this and attributed it to valium making my tremors worse, but I can stop it if I really focus, which is not the norm for tremors. The second I stop thinking about it, it comes back.

10

Not noticing something until later is how mine mostly goes
This seems to be habit or feels voluntary cos I stop it when i become aware
Is that involuntary?

11

I’d say it’s involuntary if you didn’t cause it, especially if you didn’t notice until later.
I stop rolling and folding my tongue when I become aware myself.

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12

ThE best thing to do is To ask for an aims test
It stands for something AIMS

I have wasted half my life worrying about this one
Change of meds can help
But coming off is not an option

13

If you stop meds it can get much worse and be permanent with or without it

14

So if I am tested for it and my doctor says I have it, getting off my meds is risky?

What can help with it? Back when Trump was running for office was when I first noticed I was doing weird stuff with my mouth. I kept pursing my lips funny, and I worried that people would think I was trying to make faces like Trump.

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15

I have mild TD it was a reaction to Abilify. We caught it early and the only symptom that I have at the moment is lip pursing. Every once in awhile I get a twitch in my hand. I hope it doesn’t worsen as I age.

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16

Hi - yes.

it can make it suddenly worse as the meds Can mask it while causing it i think

Ask your doc for an AIMS test - they will help.

I have had 2 aims tests both times i was fine.

i know that you can worry about anything and think you have it
i live my life thinking i have things - it’s a waste of time - but also hypochondria is part of Schizophrenia

17

I relate to thinking you look like Trump lol

I’m in the UK and think that way about looking like a Frump lol

sorry it’s not a joke…

it’s a beast, SZ. no one thinks that about you and it would never occur to them

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