I might give up getting a job. Partly due to the side effects and partly due to the illness itself, getting up every morning and going to and from work and enterract with ppl there is too exhausting to me.
I would rather stick to housework. Plus, going to somewhere I’m interested in once in a while would be enough for me. Paid jobs are not the only meaningful activities and housework is also a meaningful activity as well.
To me, life without a job is going to be something I would rather choose.
Yes, housework is a meaningful activity. I also remember you posted pictures of very good food. Do you like to cook?
Yes I like to cook and I think self-care is important.
People look me strange when I say that if there was no financial needs I wouldn’t mind not having a job at all! I guess I’m too lazy…I don’t know. I hope I won’t depend on my male partner for the rest of my life. 
What I really want is some job without fixed work time, and specially without getting up at 7am!
You are talented @bananatto I’m sure you can make something even with your hobbies.
Please take good care of yourself.
Ppl say I can make money by doing crochet … but I do it only once in a while. I can do it because it’s a hobby.
It seems like a nice idea. But…speaking as a currently stay at home mum lol I can tell you that such situation also has a bad side.
Staying out of responsibilities and work routine can easily drive you to depression and general feeling of uselessness. Also you can involve your mind into some unnecessary and unhealthy thinking just because now you have enough free time
Two sides of coin…as with everything.
I think your right…
Honestly I have no idea how my illness will go. Right now I’m feeling just fine, making me think I can keep working. It’s the ups and downs that makes me undecisive about work. Maybe quiting work will worsen my situation. Anyway I need to talk about this with the staff at the training center I go to. Thank you for your opinion on this.
How about a volunteer job just to get out on a regular basis and also build your resume. Lots of people do this - whether they have sz or not.
Yep, volunteer work to get you started is a great idea. I did some of that a few years ago, worked with autistic kids and kids with other illnesses but mostly autistic. It was the most rewarding thing I ever did with my life. Helped me heaps, humanly speaking, and I learned how to schedulle my day as well, it was very rewarding.
Usually those schools are under staffed and need volunteers. You basically learn on the job, but it’s worth it. Made some great connections there, and built relationships with the kids, it was awesome.
my mum has been doing it to help her with her anxiety and it does help, it helps her take the focus off of her illness as she has really bad tinnitus and sight and hearing problems, my sister is now trying her hand at as well, they were trying to get me to do it but i dont think i could, i think i would get really worked up doing it but i guess everybody is different and i have never tried it
Even though I haven’t worked in over three years, I’ve kept active - mentally. I don’t intend to work unless forced back to, which I hope never happens. So long as I have to suffer from chronic tiredness & weak brain nerves, focusing on tasks that are anything but ordinary is impossible.
I can’t even drive at this point - my license was revoked, don’t even own a vehicle either. I’m on par with Stephen Hawking - I can’t do a damn thing but think & write. My body feels more disabled than my mind at this point.
I agree with the admin. I am not employed or getting disability, I can’t really work anymore, but everyday I do something to improve the lives of other people outside of my family, even if it is giving a guy a ride to work, picking up cigarette buts at the club, or sitting with someone that is upset. You can make a profession out of helping others that are less fortunate and get rewards that go beyond money. Its also a good way to build up tolerance to the world, when you are actually doing something to improve it.
Butter Fly Wings Flapping Can Change Whole Weather Patterns and the Butterfly was just going from one flower to another.
9 to 5 Work is over emphasized and glorified in our society and a lot of the time it just makes people sick anyway.We don’t need more ■■■■ to fill our garages and attics with, but we need more people that take the time to care even in simple ways. Start off simple.
will be volunteering locally tomorrow
Thank you guys for all your input.
I’ve been feeling well since last night which makes me reluctant to quit work. But then I’ll start med adjustment again next week, which might change the whole situation.
I guess I need to take my training as rehabilitation rather than a way to get a job.
For me, volunteer work would be the same. It’s not that you can take it less seriously or that you can skip it as much as you want just because it’s a volunteer job. There is still responsibilities.
I enjoy it. I look forward to work in the morning and I really do take pleasure in driving my very large truck. It’s fun.
Daddy needs his electronics. The upgrades I’m doing to my light show are epic. EPIC.
Pixel.
I have two jobs (one is just an internship and the other is going out of business), nonetheless, couldn’t imagine ever having a CAREER. I wanted to work with animals but I saw this girl get clawed by an owl the other day and it turned me off to the idea. Plus I get such bad anxiety and can hardly work a 3 hour shift without getting bored and frustrated. Ughhh. My parents said they’d support me along with disability, but idk it’s frustrating.
I hope you feel better soon.
We’re all at different needs in our journey…
For me… I need a job…
The day to day routine… the consistency… It helps me get out of bed when I’m having a hard time doing that.
If I didn’t have a job I’d sleep for 600 years. Eternal sleep sounds comfy to me sometimes