Hey you! Missed you all!
I have been wanting to come on here and post, maybe talk to some one. The beginning of the month I get my injection for my issues. Those first few days, huh, I am in it or out of it. At first everything is glowing. Like everything has an aura. That lasts a few days. I am also very extremely dizzy and disoriented immediately after I get my shot. A few days of just weird and I am fine again. I wanted to reach out and see if anyone else is on Invega and if they experience similar side effects. My friend is on it and has some interesting side effects too.
After that my month had gone to the pisser. I had noticed a lump beginning to form at the top of my spine, just at the middle of the neck and down. My lower back is also in pain. Horrible pain. I made am appointment to see my doctor. When I saw him he was thinking maybe it’s a fatty tissue pocket because I have lost 30lbs. but I had lost that weight so slowly, it didn’t make sense. So he comes over to exam the area and immediately says “Oh no. This is a tumor”. My hearty began to sink as they brought in the ultra-sound machine to check it out. He showed me where it was and how it appeared to be wrapped around my spinal cord. He is hoping it is a lypoma, a fatty fibroidous benign tumor. He set me up with a surgeon on July24th. For a consultation and testing.
Monday I was in the hospital because the pain in my lower back, was so terrible, that I had to go to the hospital. My doctor said I wasn’t sitting right, I didn’t look good, get to the hospital and get your entire spine checked. He called ahead to let them know I was coming and why.
I go to the hospital and they can clearly see I am in pain. They take me right back. They give me a shot of steroids and dilaudid in the arm. Nothing. This time they give me a mg. through I.V. and instantly I feel relief. They inform me that they are not going to do any scans of my spine due to the fact that they did them in November. I was thinking, that was 8 months ago, and since then a tumor has grown at the top of my spine and god only knows what’s happening to my lower spine. So they drugged me and sent me home.
I returned to the hospital last night because the passion was so awful and my kids were catching on that something was wrong. So we left and said I was going to a friends and returned to the hospital. The doctor I got was awesome. He got me comfortable. Could only X rays to check my spine but said they could only do MRI if it was an emergent situation. They said we already know that you have severe back problems and we think the pain is just exacerbated at this time. Sent me home with more pain meds and now here I sit. In an uncomfortable body. Trying to hide from my kids the fact that I want to break down crying any minute.
My doctor, neurosurgeon, and my surgeon are trying to get me a script that would allow them to have a full MRI scan of my entire spinal area.
Now it’s just the waiting game.