I’m not doing great but I’m not doing awful… I’m struggling in the evenings and I’m unable to do much self care and my meds frighten me at times… I’m trying though and we have a plan set if things get worse
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Why do your meds frighten you?
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@anon21675834 I get a feeling like I’m going to not wake up as I fall asleep and it makes me extremely loopy I feel like I’m drowning in a way idk how to really explain it
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Hang in there @Twialine!
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Thanks @Vertigo you’re always so kind
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get on different meds !!
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@jukebox nurse practitioner is refusing to switch me because I’ve tried so many with very little to no relief…
what about fluphenazine?
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Have you tried clozapine…?
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@jukebox idk I’ve never suggested a med
She will require weekly blood work for 6 months then every other week for 6 weeks then every 3 weeks for 6 months then every 3 weeks for 6 months then every 6 months… To much blood work and my kidneys aren’t always the best
ask for generic prolixin.
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@jukebox I’m not comfortable suggesting meds honestly
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this med requires no blood work, no sexual side effects, I lost all my extra weight on fluphenazine…please try it.
@jukebox I’m NOT comfortable
ok ok…I’m so sorry…
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@jukebox thank you for understanding
Yeah it’s a big commitment.
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@Fight.for.me my mom and husband aren’t comfortable with a med “that dangerous” mom’s words
Yeah it can seem dangerous…but for me, personally it was worth the risk. I would be dead or homeless without it.
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@Fight.for.me I’m thankfully not at that point and some things are under control… I’m just struggling with Seroquel maybe I’ll get better… I take it for sleep and hallucinations… I take another med for hallucinations twice daily I just need more at night