How is to have schizoaffective disorder? What do you feels?

DX'd - Other
21

@turningthepage, @Reggie, @cbbrown

Is Clozapine dangerous if I take it with Geodon?

22

@turningthepage, I think the schizoaffective illness is why my dad is so skinny. he only weights 130 pounds

@Andy my doctors also say I have PTSD. donā€™t compare your prognosis and accomplishments of recovery to anyone elses. doctors have told me time and time again everyone responds the meds differently.

23

@cbbrown

It it like I said that the prognosis depends of each individual.
And the medication also depends of each individual.
Some can get better fast, other canā€™t.
Some get better with some medication, other donā€™t.

24

i am resistant to meds for some reason.one doctor said it was because of my weight others have said it just something that happens with some people. I donā€™t know there are so many mysteries about sza and sz that I donā€™t even know where to begin.

25

@cbbrown

Iā€™m resistant to medication also.
Iā€™ve tried a lot of different medications:
I tried these:

  • risperidone,
  • haloperidol,
  • quetiapine,
  • sulpiride,
  • chlorpromazine
  • and now ziprasidone
26

As i said before, my schizophrenia type is refractory.

27

Hi Reggie,
Do you feel isolated? I do. Iā€™m 26, was the sun, which my friends revolved around (was a jewelry & clothes model for QVC, so had been very outgoing;, yet in 2 short years, my friends one by one left me and even if they stuck around, I doubt theyā€™d ever understand. Or.worse yet, theyā€™d judge me. I worry I may be becoming agorophobic. But I have no one to support me going out or pushing me to.How do you handle leaving the house?

28

I was the same, center of my circles of friends, But very few are left. I usually dont leave the house after dark and when i do it is only on my ā€œgoodā€ days. I am still struggling with pulling my social life back together but it seems to get better the more i try and push myself. Routines are big for me, gets me out of bed and doing normal things, otherwise ill just lay around, depressed and sleeping all day, but every day is a diff struggle. I feel your pain about becoming agoraphobic, didnt leave the house much for months but have been attempting to shake it only lately. Its not easy, but accepting myself and being open and discussing my troubles with close friends and even new aquiantances has been vital. Very awkward at first but getting better slowly. Reconnecting with most of my old friends has been the most difficult because they knew me before my breaks and still not sure how to approach some of them. My fiance has been vital in supporting me and prob wouldnt be able to do it without her. Accepting that some people just wont understand has been crucial also. Its hard, i imagine, without anyone to support you. Is there anyone you can lean on? Even if they dont completely understand a little support goes a long way.

29

@Andy
I was on 160mg geodon for schizoffective depressed type.

Having sza is full of confused thinking. With or without depression. I never know what Iā€™m truly thinking. My thoughts are being controlled. I have had 3 acute episodes in a year and other daily psychosis with my thought problems. Demons in my head and around me etc. I believe my ex boyfriend can read my mind after my last psychotic episode.
I had to be sent to a residential place for a month to finally be diagnosed with schizoffective because my doctor didnā€™t know if it was schizophrenia or schizoffective or ocd