How can you crack this awful illness

how can you crack it

I don’t know what you mean?

You can crack it by keeping busy and getting out
Be positive
Be determined
That’s how I try crack it
Mind u I wouldn’t say I totally cracked it yet as in reality it’s ruined my life but then who’s life is perfect some are blessed but others aren’t
You just have to make the most of what you got and hope

4 Likes

is it possible to be in control of this illness

I’ve been out of hospital for 3 years, so I guess I’m in control of it. How long have you been out of hospital ? What parts of the disease do you feel you’re not in control of?

got discgharged 3 months ago…the voices are driving me crazy…do this do that…

1 Like

I have been out of hospital for around twelve year now
In live on my own and I am doing ok. My life now is finally bearable and I feel I’m going upwards and managing my illness better all the time

1 Like

I’m not a doctor, so take my advice with a grain of salt. But have you tried more than 1 AP at a time. I.e. Being on 2 APs at once.

From what I remember you were on clozapine.

I was classified as clozapine resistant, but in the end got a response from polypharmacy with a 1st and 2nd generation AP. Clozapine isn’t the be all and end all - though I appreciate it can be the ‘magic bullet’ for many.

2 Likes

Maybe you can’t be in control of the illness, but you can be in control of how you respond to the voices.

Talk to your pdoc about challenging the voices. Take an active role in your recovery. AP’s a great, but they only do so much, the rest of the work has to come from you. Maybe therapy would help you, some good CBT or something.

Shelley’s advice is sound, stay positive, get out, remove yourself from the illness and focus on something or someone other than yourself when you can.

It’s not easy but you can do it. It takes a lot of hard work but it’s worth it.

Keep a journal of what the voices are saying to you and what else is going on in your day when they say that stuff to you. Take that to your pdoc and therapist because they need context in order to help you.

Stay positive. You can do it, I believe in you.

2 Likes

It’s controllable for some people. I stayed out of the hospital for 26 years until just a year ago when I got suicidal about my moms death and losing my housing, having to quit college, I couldn’t drive my car, I was constantly in pain from a bad back, and I had to leave work for two months. All this happened last year in the space of two weeks.The final straw was having to drive 150 miles by myself on short notice to visit my mom in the hospital. That drive was the drive from hell and I cracked under the pressure. I would do it all over again to visit my mom if she were still alive but that drive ruined me.

But anyways, I got diagnosed with paranoids scgizohrenia when I was 19 in 1980. After an initial two years of solid suffering and being hospitalized for 8 months and living in a group home I became fairly stable. Even during those first two years I could pretty much move freely in public without anyone knowing anything was wrong with me. And that stayed true most of the time for more than twenty years.

I never act out or draw negative attention to myself, its just sometimes lately people can tell something is wrong with me but they don;t know my diagnosis. This may sound-kind of weird but the times people can tell is when I’m being too nice to them. I kind of do it unintentionally but weird as it sounds, that is my biggest downfall.

2 Likes