Joker
January 18, 2022, 12:04pm
1
Sounds like a massive decision with all the monitoring etc, but I was at risk of an out of control QTC Heart thing as I am just above the limits, so adding Queitapine isn’t really an option.
There was a typical AP they said as option 2, but I have bad experiences with Haldol…
This pharmacist had to look at my meds history from 2003, and Clozapine is the preferred option, so I said yes man
12 Likes
Kxev
January 18, 2022, 12:07pm
2
Hope it is good for you.
My pDoc told me its the gold standard for SZ.
Are you okay with the regular bloodwork?
2 Likes
Good luck, maybe you can cope on a lower dose, and be monitored!
3 Likes
Joker
January 18, 2022, 12:10pm
4
Don’t really have many other options that will work as well as this one seems to, so I’ll have to put up with it!
Apparently they have a machine that checks it instantly
4 Likes
I hope it works well for you
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Joker
January 18, 2022, 12:42pm
6
I was told to watch this:
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Welcome to the club of long sleepers!
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Joker
January 18, 2022, 1:03pm
8
Won’t be able to do that as I have a dog and a job!
Will see what state I am in in a few weeks time, but I am hopeful things should be ok
1 Like
What is the dose that they are going to put you on?
Joker
January 18, 2022, 3:05pm
10
No idea. They will up it everyday for 2 weeks until it’s optimal.
Apparently because I smoke it might have to be a higher than usual dose for me
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Bowens
January 18, 2022, 3:13pm
11
Good luck with Clozapine @Joker
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Joker
January 18, 2022, 3:19pm
12
Thanks all who have commented.
2 Likes
Wave
January 18, 2022, 3:29pm
13
Hopefully this will work for you.
Clozapine is usually very effective.
Good luck @Joker
2 Likes
Aziz
January 18, 2022, 5:50pm
14
Good luck with Clozapine. I would be on it if it wasn’t for the weekly blood tests.
Joker
January 18, 2022, 5:54pm
15
Here the weekly tests are for 18 weeks. I have to be under the crisis services for 2 weeks so they can do physical checks at home
Apparently you used to have to be inpatient previously to start Clozapine, but no more.
The first day I have to spend 6 hours in a outpatient clinic whilst they monitor me.
We will have a disagreement if I can’t have my smoke breaks.
1 Like
Speedy
January 18, 2022, 5:57pm
16
Good luck with the new med! I hope it works well for you.
I know finding the right meds can be a pain in ass. I’ve heard great things about clozapine.
Aziz
January 18, 2022, 5:58pm
17
Joker:
clinic
I did the heart EKG test for Clozapine but then changed my mind and stayed on 6mg risperidone because of the regular blood tests. How was your EKG? The nurse shaved my chest for the tests to put electrodes.
Joker
January 18, 2022, 6:06pm
18
Aziz:
EKG
I did this and my QTC was borderline, but everything else was fine I think
Have bloods being done tomorrow, so hopefully that’ll all be ok
If you ask me I think people on any AP need more than just a token yearly physical done.
This whole Clozapine business seems like a lot of effort, but to stop the torment I think it’s probably worth it
2 Likes
Joker
January 19, 2022, 6:30am
19
The thought of this is making me feel sick.
Just read the 30 page PDF on how to manage Clozapine.
They don’t mess around, this is going to take a lot of effort to keep going
Not sure I am up to it
1 Like
They definitely take it serious in the UK. I just got the pills. Had to do blood tests every week. Then every month and now I don’t even have to do those anymore.
Never got a document to read.
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