idk if anyone cares but i suffer from CFS/ME and it seems to be getting worse, i have been struggling more and more & now its at the point where i need to really cut my load,
I don’t have a car anymore and i can barely get about I’ve been using trains/subway, & its too much for me atm, I don’t think I’m able to attend my clubhouse as much as i use to and so i think i will be going at a much reduced rate, i mean like cutting it by 20 hrs a week,
You have to listen to what your body tells you. Do what you can manage. You love the clubhouse but if you have to reduce time there to feel better within yourself then so be it. My husband has illness and he is getting tiredness every day from the moment he wakes up. He won’t go to doctors though. He has throat benign tumours and mild arthritis but boy is he tired he’s like a 70 year old and hes 50 next week
I’m sorry to hear about your husband @Ducky , i think at some point its not a matter of ‘maybe i can get through it’, its just accepting it and saying ‘no’ its too much, i got to stop now, i am lucky in a lot of ways, i just hope i can manage it. I need to put myself first as my health is top priority right now.
@labratmat i have been getting really down, depressed & mixed up lately, i’ve held on to my routine as much as i can, i am cutting things right back now because if i dont it will be even worse for me, i am hopping to still attend online and go on a wed/thurs afternoon but thats it & i have some back up plans as well.
Thanks, tomorrow is a big day, I have music class in the morning then I’m meeting with a friend for her photoshoot later. My shoulders are really sore right now as well i think my posture has improved but its really painful or it may be because of when i was carrying the guitar on my back last week
I got really triggered tonight by news on tv it was all about sex trafficking, rape, sexual assault
I can’t handle listening to anything about that. It seems theres so much evil in the world it blows my tiny mind. It goes into a dark place and disturbs me.
I have CFS because of long COVID. It sucks, especially on top of my normal negative symptoms. I maintain schedules in Google Calendar and force myself to stick to them even when I do NOT want to. It’s what keeps me going.
Im glad you are able to do that, right now for me its R&R, i have severe pain in my shoulders right now as well, looks like a trip to get checked, i dont need this on top of everything else, i wish o could just push theough, i have been pushing through but ive reached my limits, i need to admit to myself i just cant do everything now, its impossible.