That most of us aren’t getting the help we need. Most obviously from a medical rather than a psychological point of view. The meds just aren’t helping enough. If humanity persists somewhere between 2 and 50 years from now I believe we’ll have medicine that treats the whole gamut of symptoms. Medicine that makes us feel human again. There are people on this site and countless people in our lives who seem to think it’s a problem of will and mindset and I just don’t think that’s the case. I think so many of us are trying so god damn hard. I think we’re trying to run a marathon with broken legs. I’m just tired of feeling like a failure. I mean imagine if you could make the people that judge you feel the way you feel for an hour. Then have them come to. What do you think they’d say. You’d tell them it’s been that way for decades and they’d shake there head in disbelief. This disease is brutal. We are not failures.
I have been taken care of with disability pay and health insurance and great Psychiatrists and therapists and family support. So much compassion and concern over me. If somebody else can do it then why cant I? Like a person without legs becoming a champion wheelchair racer.
What can’t you do? I’m not exactly sure what you mean.
I cant complain kind of. I have been well taken care of and shown a way by people on this forum who have a will and mindset that is getting them to function.
Im not saying it’s impossible to function. I start a new job next week in fact. I’m just saying the treatments we get don’t help enough. Like it kind of sucks that my goal is to get back to work and take care of myself but even when I do that when I get home at the end of the day I’m not going to feel good. I’m not going to be able to lay in my bed fully relaxed and just feel nice. That’s kind of the hell of negative symptoms. They take the little pleasures away. I think some peoples minds are so formulated towards goal obtainment that functioning is happiness.
I didn’t get enough help from either. Docs mostly want to hand out meds. In terms of counseling and therapy, it is severely underfunded because my country emphasizes the pharmacological model. It’s cheaper to nuke SZs into silence with pills or shots. A holistic approach costs money.
I’m my own support system 90% of the time. No one else stepped up so I had to.
Do you have any advice on how to feel good at the end of the day? Like are you able to sit in a chair with some music and just bliss out?
You seem to be equating happiness with success and unhappiness with failure.
All the time. Reading a book on emotional eating and drinking tea with Enya playing right now.
Keep a list of goals and nail one each day. Doesn’t matter how small it is, but when I know I accomplished something on my list I just feel better. Today’s dumb thing was callus maintenance. I walk a lot and have very thick calluses on my feet. I sat on the deck for 20 minutes over lunch and worked them down with a callus shaver. My feet feel better.
Well there’s definitely a certain amount of self esteem that comes with self sufficiency and essentially everyone I know derives some of there self worth from what they do, or at least the fact that there able to take care of themselves. To be clear success as it’s traditionally defined means very little to me. To put the nail on it what means everything to me are positive sensations. Positive perceptual experiences. That’s what I want.
I can enjoy functioning now. I have flowers to plant and a garden to weed out. I actually look forward to enjoying doing this. I can sit on my drumset all alone in a stress free situation and play to songs and be in bliss. I have to manage my energy output and focus and effort.
How long did it take to regain the ability to feel good again? Where there any tricks? Did you ever really push and try to make yourself enjoy something? Like reconditioning your capacity to feel good?
Some people with “mental illness” get everything…
They get so much love , respect, kindness, support, inclusion, etc
Also holidays , home , activities, ndis real care support workers etc
While others get opressed , coercive control , disrespect, excluded and outcast from “community “ , bullied , walked over , criticised all day for anything they do or don’t do , hated , lied n gossiped about , not welcome anywhere or if they go they get attacked n made clear they ain’t wanted of welcome , not allowed out , no real kindness only fake kindness while attacking , no real care , fakeness , trying g to steal , trying steal who they r n riches from them so they “empty meat suffering in way “….
Very “educated malicious immature disgusting fckrs how can such immature disgusting fckrs get positions of so called “power “ they use to opress steal r slave if can and steal and steal and etc
Some are made to look and feel good in what stolen from one or ones look n feel bad … sometimes that’s how is …
They look n ferl good in the shadows energy and golden moments and light and presence and eyes and nature and air and wonderful space etc while “the shadow “ doesn’t get ferl like self n
You and me do not have the same illness lol. One of my core problems is my inability to enjoy things
I think five or six years to really enjoy things again. I spent a lot of time pushing at stuff I used to enjoy and feeling bored, but telling myself I was doing something enjoyable. After a certain point the switch flipped and it was enjoyable, but I gave up several times along the way and had to be strong-armed into trying again by AA sponsors.
It’s just consistency. I know all this ■■■■ I just can’t do it everyday
I couldn’t either. Just do what you can when you can. You’re Kyle Reese, not a T-800.
I am learning to love having to do things I have to do when I don’t feel like it daily. Do I dread them still? Not like before. Do I fear exhaustion? Yes. Do I have examples of poeple? Yes, my father. Is he stressful on me? Yes. Do I see my body and mind adapting and enjoying the process? It is what I wanted. My will never really left me but torments me when I am in the negative symptoms of schizophrenia. I still am delusional also. But I delight in my delusions with philosophy and reasoning. As long as my functioning continues to be enjoyed fully. I am ok. When I don’t enjoy functioning I go into rebellion and reason and it makes me tormented and consumes my energy.
Yes we can agree, but I don’t think there is anyone to blame. There is a lot of research in the development of new meds for SZ, and in my country there is a lot of public help for people with SZ.
It is just such a complicated illness to treat so in the end a lot of us end up suffering anyway. And you are right - most of us struggle really hard to make a decent living with SZ.